I wanted to finally post here after a few years of reading and researching on this helpful forum. I'm literally sitting in a lobby at Mayo Clinic in Rochester, MN waiting for the schedule to open up for 4 tests; MRI, Endoscopy with ultrasound, colonoscopy, and a straight up endoscopy. I met with Dr Edward Loftus on Tuesday and we are very impressed with his thoroughness, his warm bedside manner, his keen intelligence (without the arrogance, thank you!). I was being treated at Stanford Hospital since January with the "expert" who put me on 6MP which sent my liver into toxicity. Thankfully my great local GI caught it and pulled the dose down and referred me to Mayo and UCSF. I have been on Beudesonide for 2 years (horrible side effects), Pentasa, Creon and Prilosec for GERD, in addition to the 6MP. Stanford diagnosed me with Auto Immune Enteropathy of the small bowel. A very rare IBD. We are at Mayo to determine if I do indeed have AIE or if I have A-typical Crohn's. I have lost 20lbs this past two years, was hospitalized in June at Stanford for a week with a total inability to digest anything, even water could not be absorbed. It has been a horrible journey since the sudden onset in November 2011. I am conservatively hopeful Mayo will get down to the root issue and find a protocol my body can handle. Dr Loftus mentioned Remicade and Humira. I am not excited about either of these medication. Lots of questions!! I hope to find support here with all of you. Thank you in advance!