Okay folks, I have been a member on here since I was diagnosed nigh on 3 years ago now. Did the standard run up on everything (drugs) until I started Remicade 18 months ago. Tummy trouble has settled - YEAH!! Trade off has seemed to be my butt. I have had recurrent perianal abcesses for almost 2 years now (outside of rectum, have always developed into fistulas, or been from complications of fistula, had some on both sides). I have had 3 surgeries (lay-open, setons, etc) and am currently sitting on a lump that feels the size of Nebraska (not that I really know how big that state is as I am a proud Canuck, that being said 50% of americans don't either, I digress - and sorry for the dig to my Yankee brothers, lol). I have another apointment with my surgeon on Thursday and know I will be having yet another surgery soon (I am on a first name basis with him, as I should be seeing as how many times I have had... lets just leave it there) Okay, so I have done the sits baths, I have "massaged" the area, I have taken everything from Tylonol to T4's, percocet to, well, I would try pot, but I am too old to find it anymore! I have been diligent in cleaning, moisturizing, etc. I need to know if anyone has ANY suggestions as to how to help with these. Seriously, even ridiculous ideas like wrapping a gopher around my neck while naked, covered in honey and corn flakes screaming I am a monkey god. I will try it. The doctors just tell me there is nothing I can do and as you can tell I am sick of this. I have had to wear feminine hygine products in my shorts for 18 months, am not comfortable having sex with my wife and am in pain constantly. Anyone with any suggestions - shoot!
Sorry to rant, just need some help!
Sorry to rant, just need some help!