Hi Guys,
Forgive me if I'm breaking any rules as I'm new to forums. I know there are threads on "No Pain" but I couldn't find one closely related. I wish to see if there was anyone with a similar story or advice that anyone can give. A little intro of my issue:
Diagnosis: Ileal Ulceration (2011), Crohn's Disease (2012 via biopsy)
Symptoms: No pain rectal bleeding only (sometimes heavy fresh bleeding)
Medication: None to date.
Since my diagnosis in 2011 I've had a couple of "flare-ups" although I never have any pain whatsoever, I only lose large amounts of blood sometimes to the point where I need blood transfusions.
I have always doubted my diagnosis and I've rejected immunosuppressant treatment because of the worry of its side-effects. At times had up to two years in remission - except 2014 where I've "flared-up" almost 5 times in these past six months. It has now pushed me to decide whether I should accept the treatment (Azathioprine) despite my belief that the side-effects heavily outweigh my single problem of bleeding (drastic none-the-less). Doctor's offer no other option.
My greatest fear is destroying my immune system long term and not living a normal life. I live a normal life except during these bleeding episodes where I have to rest it out till the bleeding stops.
I'd like to hear if anyone has any similar stories or advice on going forward with treatment?
Forgive me if I'm breaking any rules as I'm new to forums. I know there are threads on "No Pain" but I couldn't find one closely related. I wish to see if there was anyone with a similar story or advice that anyone can give. A little intro of my issue:
Diagnosis: Ileal Ulceration (2011), Crohn's Disease (2012 via biopsy)
Symptoms: No pain rectal bleeding only (sometimes heavy fresh bleeding)
Medication: None to date.
Since my diagnosis in 2011 I've had a couple of "flare-ups" although I never have any pain whatsoever, I only lose large amounts of blood sometimes to the point where I need blood transfusions.
I have always doubted my diagnosis and I've rejected immunosuppressant treatment because of the worry of its side-effects. At times had up to two years in remission - except 2014 where I've "flared-up" almost 5 times in these past six months. It has now pushed me to decide whether I should accept the treatment (Azathioprine) despite my belief that the side-effects heavily outweigh my single problem of bleeding (drastic none-the-less). Doctor's offer no other option.
My greatest fear is destroying my immune system long term and not living a normal life. I live a normal life except during these bleeding episodes where I have to rest it out till the bleeding stops.
I'd like to hear if anyone has any similar stories or advice on going forward with treatment?