Hi.
I'm the father of an older child that has Crohn's. He was diagnosed at 14, he's now 30.
I know a lot about the treatments, the steroids, Humira, the pain & suffering he goes through...
What I'd really like to know is: are there any other parents, siblings, friends, relatives out there that have been, effectively, abandoned by their Crohn's-affected loved one? My son has had severe mood swings with a lot of people and I've not been able to deal with it effectively, I guess. And recently, he completely stopped all contact with me.
The last time he spoke to me was at my granddaughter's birthday party (she and I are 3 days and 44 years apart)....almost 6 months ago today.
I sure do miss him. I don't know what to do other than just bide my time and hope he'll come around. He's been at this stage whereby he may or may not have to have surgery and has had to go back on higher doses of steroids, the Remicade stopped working - you know the drill.
I know he's suffering and I'm almost ashamed to admit it but this is the hardest thing I've ever been through. If there's anyone out there w/a similar story and any advice on how to deal w/it, I'd be very grateful for any advice.
Thanks!
I'm the father of an older child that has Crohn's. He was diagnosed at 14, he's now 30.
I know a lot about the treatments, the steroids, Humira, the pain & suffering he goes through...
What I'd really like to know is: are there any other parents, siblings, friends, relatives out there that have been, effectively, abandoned by their Crohn's-affected loved one? My son has had severe mood swings with a lot of people and I've not been able to deal with it effectively, I guess. And recently, he completely stopped all contact with me.
The last time he spoke to me was at my granddaughter's birthday party (she and I are 3 days and 44 years apart)....almost 6 months ago today.
I sure do miss him. I don't know what to do other than just bide my time and hope he'll come around. He's been at this stage whereby he may or may not have to have surgery and has had to go back on higher doses of steroids, the Remicade stopped working - you know the drill.
I know he's suffering and I'm almost ashamed to admit it but this is the hardest thing I've ever been through. If there's anyone out there w/a similar story and any advice on how to deal w/it, I'd be very grateful for any advice.
Thanks!