Hi all. I'm really new
here and just saw the parent's board. After many, many months of missing school, abdominal pain, cramping, gas, diarreah, and vomiting, our pediatric GI doctor ordered a CT for my 9 yo daughter "just to prove to her that there was nothing wrong". The next day his nurse called us to come back in. Inflammation and scarring of the terminal ileum. Not surprising to me. Both my mother and I have CD. Even with the results, he said her symptoms were not related, only caused by anxiety. No treatment. Nothing else. I obtained a copy of the CT from the hospital. The radiologist certainly felt it was IBD- w/ no info on family history- just clinical findings. I need a good specailty center to get us started on the right path, then we'll follow up at home. Any ideas?
here and just saw the parent's board. After many, many months of missing school, abdominal pain, cramping, gas, diarreah, and vomiting, our pediatric GI doctor ordered a CT for my 9 yo daughter "just to prove to her that there was nothing wrong". The next day his nurse called us to come back in. Inflammation and scarring of the terminal ileum. Not surprising to me. Both my mother and I have CD. Even with the results, he said her symptoms were not related, only caused by anxiety. No treatment. Nothing else. I obtained a copy of the CT from the hospital. The radiologist certainly felt it was IBD- w/ no info on family history- just clinical findings. I need a good specailty center to get us started on the right path, then we'll follow up at home. Any ideas?