Hi :ysmile:
This is the first time I have ever gone on a forum for Crohn's disease. I am sure everyone has interesting stories of how they were diagnosed, however, I have an extremely odd case, from what I am told. I was born with Crohn's disease (supposedly). I have had intestinal, abdominal, and acidic stomach pain for my entire life. I got so used to being in pain my whole life and was told that there was nothing wrong with me, because nobody could figure me out for so long, that I just decided to ignore the pain. Finally, at the age of 21, I was at work, and was bending over, unable to stand up straight, while holding my stomach, in severe pain, and was trying to sell something to a customer. My boss had enough, she let me know that I had to go see a doctor immediately, or else I would be in serious trouble at work. I had been written up because of calling in sick a couple of months before. I left work, and went straight to the urgent care, where I met a doctor that saved my life.
This doctor, felt my stomach, me wincing in pain as he was feeling around, and said "You have so much inflammation all over, you have to go to the emergency room NOW!". I was very scared, because my whole life, no doctor had ever said that to me. Practically crawling into the Emergency room, I was taken in quickly. I had about 15 doctors in the room trying to diagnose me. Before they had a CT scan or anything, they assumed it was appendicitis, and a surgeon was so sure of it, he didn't even want to take a second look! All of the other doctors agreed with he surgeon, accept for one, my GI doctor now. He said he wouldn't let anyone operate until he had a CT scan. Luckily, my incredible boyfriend was there, and helped answer questions the doctors asked. When they asked if I had pain often, my response was, well not really, im just sensitive. My boyfriend quickly interrupted me and said, no, she is always complaining of pain. They found 32 ulcers lining my intestines, my intestines were about to rupture, and if i hadn't gone to the emergency room that day, I would have died. I learned that I have an extremely high pain tolerance, according to the 15 doctors I saw!
It's been three years that I have been diagnosed with severe Crohn's disease. I have been on aziprothrone, Humira, Imuran, Entercort, Prednizone, Cipro, Norco, dialidin and just about everything my doctor could think of. Nothing seemed to help my case. In fact, I was just diagnosed with PANCREATITIS from the Humira. I have formed a dependency on pain killers and take steroids more often than I'd like. I can not eat anything raw (salad, uncooked vegetables, fruits, and etc.), no lactose, nothing creamy, no red meat, no brown rice (wheat bread, etc.), absolutely no caffeine, and nothing with alot of sugar (this is a new one, I think because of pancreatitis). That pretty much leaves me with absolutely nothing to eat without being in pain!!!
My doctor has pretty much thrown his hands up in the air because he has no idea how to treat me. I need serious help, and am SO frustrated with being in pain. Pain killers no longer help my pain much at all, I hate that I am addicted and don't know what to do about it. I have to have a job and a life, and feel I can't do that while Im in so much pain everyday, I feel like my Crohn's runs my life, as well as pain killers. Not to mention, my boyfriends mother is addicted to pain pills and she doesn't really have pain, so I have to hide that I even take pain killers from him because he hates seeing them. Someone please give me some advice. I am so depressed and have so much anxiety over this.
Respectfully,:heart:
Crohn's Girl
This is the first time I have ever gone on a forum for Crohn's disease. I am sure everyone has interesting stories of how they were diagnosed, however, I have an extremely odd case, from what I am told. I was born with Crohn's disease (supposedly). I have had intestinal, abdominal, and acidic stomach pain for my entire life. I got so used to being in pain my whole life and was told that there was nothing wrong with me, because nobody could figure me out for so long, that I just decided to ignore the pain. Finally, at the age of 21, I was at work, and was bending over, unable to stand up straight, while holding my stomach, in severe pain, and was trying to sell something to a customer. My boss had enough, she let me know that I had to go see a doctor immediately, or else I would be in serious trouble at work. I had been written up because of calling in sick a couple of months before. I left work, and went straight to the urgent care, where I met a doctor that saved my life.
This doctor, felt my stomach, me wincing in pain as he was feeling around, and said "You have so much inflammation all over, you have to go to the emergency room NOW!". I was very scared, because my whole life, no doctor had ever said that to me. Practically crawling into the Emergency room, I was taken in quickly. I had about 15 doctors in the room trying to diagnose me. Before they had a CT scan or anything, they assumed it was appendicitis, and a surgeon was so sure of it, he didn't even want to take a second look! All of the other doctors agreed with he surgeon, accept for one, my GI doctor now. He said he wouldn't let anyone operate until he had a CT scan. Luckily, my incredible boyfriend was there, and helped answer questions the doctors asked. When they asked if I had pain often, my response was, well not really, im just sensitive. My boyfriend quickly interrupted me and said, no, she is always complaining of pain. They found 32 ulcers lining my intestines, my intestines were about to rupture, and if i hadn't gone to the emergency room that day, I would have died. I learned that I have an extremely high pain tolerance, according to the 15 doctors I saw!
It's been three years that I have been diagnosed with severe Crohn's disease. I have been on aziprothrone, Humira, Imuran, Entercort, Prednizone, Cipro, Norco, dialidin and just about everything my doctor could think of. Nothing seemed to help my case. In fact, I was just diagnosed with PANCREATITIS from the Humira. I have formed a dependency on pain killers and take steroids more often than I'd like. I can not eat anything raw (salad, uncooked vegetables, fruits, and etc.), no lactose, nothing creamy, no red meat, no brown rice (wheat bread, etc.), absolutely no caffeine, and nothing with alot of sugar (this is a new one, I think because of pancreatitis). That pretty much leaves me with absolutely nothing to eat without being in pain!!!
My doctor has pretty much thrown his hands up in the air because he has no idea how to treat me. I need serious help, and am SO frustrated with being in pain. Pain killers no longer help my pain much at all, I hate that I am addicted and don't know what to do about it. I have to have a job and a life, and feel I can't do that while Im in so much pain everyday, I feel like my Crohn's runs my life, as well as pain killers. Not to mention, my boyfriends mother is addicted to pain pills and she doesn't really have pain, so I have to hide that I even take pain killers from him because he hates seeing them. Someone please give me some advice. I am so depressed and have so much anxiety over this.
Respectfully,:heart:
Crohn's Girl
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