I am looking for... I'm not sure, I have not had it easy! I was diagnosed with crohns and tolerated it well ( not kept great but if anyone asked... I was fine) I then fell pregnant (so happy) against what they said I carried my beautiful daughter till 36 weeks where they induced me as my crohns was so bad!
I was meant to reduce steroids as per protocol as thought once my daughter was out things would be better. Things got worse when she was 9 weeks and I was admitted to hosp. My husband, daughter and I spent 9 week as a inpatient, where i refused surgery but then I was started on infliximab which they made me stop breastfeeding for (broke my heart) and eventually I was discharged, sadly the infliximab failed and I flared up again, I was commenced humira which worked wonders for a year and now I am just out of hosp following Anothee flare, i am now on double dose humira which seems to be working ok not great but tolerable, my consultant has asked me to see a surgeon and stoma nurse ( for information) as he feels I have scraped surgery so many times and I have refused so many times, he thinks it's going to happen soon, it scares the living day lights out of me!!!!
I was meant to reduce steroids as per protocol as thought once my daughter was out things would be better. Things got worse when she was 9 weeks and I was admitted to hosp. My husband, daughter and I spent 9 week as a inpatient, where i refused surgery but then I was started on infliximab which they made me stop breastfeeding for (broke my heart) and eventually I was discharged, sadly the infliximab failed and I flared up again, I was commenced humira which worked wonders for a year and now I am just out of hosp following Anothee flare, i am now on double dose humira which seems to be working ok not great but tolerable, my consultant has asked me to see a surgeon and stoma nurse ( for information) as he feels I have scraped surgery so many times and I have refused so many times, he thinks it's going to happen soon, it scares the living day lights out of me!!!!