Hi again
So I'm currently battling the pred yoyo diet. Have been on off pred for almost a year now, can't get below 15mg before I start flaring again. I've spent the last couple of months basically at a high dose (40mg) & am now coming down to 35mg for two weeks whilst I wait for the Humira to be delivered/set up. Then will continue to taper I guess as the Humira kicks in.
Problem I'm having is the side effects of the pred are getting ridiculous. It looks (to me & im seeing my gp tomorrow to confirm) that I've got Cushing's syndrome cos of the pred. But I'm not sure as symptoms/side effect of pred are very similar. But I've found this past week I've felt so rough, my face & tummy are swollen, my mood is just blah (up down wanna cry wanna scream wanna sleep), am completely exhausted & have no energy to function (which sucks with two children to look after) I'm bruising really easy, purple spots have appeared on my boob & leg for no reason, have an annoying cough & shortness of breath & I feel like my head is going to explode & heart burst out of my chest. My GP is seeing me tomorrow to check me over but he said there's not much he can do as it's most likely the steroids & as I can't taper just yet I have to deal with it.
Does anyone else have any ideas on how to cope with this? Or anyone have Cushing's syndrome & take anything to help it? Also with the Humira do you feel better straight away? Does the Humira cause similar side effects to the pred? Am so sick & tired of feeling sick & tired & just want to feel better (as I'm sure we all do)! Sorry this is kind of a mismatch post I just didn't wanna fill up the forums with all my medicine questions.. Sorry also for the rant. It's been a rough day
So I'm currently battling the pred yoyo diet. Have been on off pred for almost a year now, can't get below 15mg before I start flaring again. I've spent the last couple of months basically at a high dose (40mg) & am now coming down to 35mg for two weeks whilst I wait for the Humira to be delivered/set up. Then will continue to taper I guess as the Humira kicks in.
Problem I'm having is the side effects of the pred are getting ridiculous. It looks (to me & im seeing my gp tomorrow to confirm) that I've got Cushing's syndrome cos of the pred. But I'm not sure as symptoms/side effect of pred are very similar. But I've found this past week I've felt so rough, my face & tummy are swollen, my mood is just blah (up down wanna cry wanna scream wanna sleep), am completely exhausted & have no energy to function (which sucks with two children to look after) I'm bruising really easy, purple spots have appeared on my boob & leg for no reason, have an annoying cough & shortness of breath & I feel like my head is going to explode & heart burst out of my chest. My GP is seeing me tomorrow to check me over but he said there's not much he can do as it's most likely the steroids & as I can't taper just yet I have to deal with it.
Does anyone else have any ideas on how to cope with this? Or anyone have Cushing's syndrome & take anything to help it? Also with the Humira do you feel better straight away? Does the Humira cause similar side effects to the pred? Am so sick & tired of feeling sick & tired & just want to feel better (as I'm sure we all do)! Sorry this is kind of a mismatch post I just didn't wanna fill up the forums with all my medicine questions.. Sorry also for the rant. It's been a rough day