My taper is at a temporary stand-still for the moment. I told my GI I'm staying at 6 mg for at least another week or two before I try again to taper. When I do try to taper, I'm going to go down to 5.5 mg. But I have yet to pick up the 2.5 mg tablets from the pharmacy and I'm in no rush to taper just yet, I need to recover more fully from my last taper fail first. Ugh.
I was initially so happy to get down to 6 mg, because previously I couldn't get below 10 mg without having a flare/taper fail. I had been begging my GI for months to put me on LDN, and he finally agreed, and once LDN started kicking in then I was able to get below 10 mg pred. So happy! But then it all came to a halt again when I tried tapering to 5 mg and failed at that, twice. I'm hoping 3rd try is the charm! I don't want to be stuck at 6 mg pred forever. So close and yet so far...
Oh gosh, I'm glad I haven't thought to try big hoop earrings! But I am wearing long dangly earrings today in an effort to draw the eye away from my face flab.
I think it's working! They haven't gotten stuck in anything other than my hair so far, so I think it's a success.
Speaking of hair, has anyone else's hair been falling out (like, more than usual) while on pred? Mine has been falling out a lot, sometimes even in clumps, and it was never thick to begin with. It's always been fine and thin, and is much more thin nowadays, so that has been a big impetus for me to try to get off of pred. I don't have much hair left to lose before I start going noticeably bald!
Part of me wants to just shave it off and start over fresh, but I don't think my face is cute enough (nor do I have enough confidence) to pull off a shaved head look. It takes a certain kind of woman to be able to rock that look and I don't think I'm it.
Back to the subject of the non-steroid wardrobe - I've gained a bunch of weight, too. Before this flare started (back in July 2016), my weight was at about 146 lbs. But a lot of it was muscle because I was a regular exerciser. I could fit into a size 6 pants back then. Then, I flared, and I lost 17 lbs in about a month, and dropped down to 129. I stayed at 129 for as long as I was on a liquid elemental diet, but of course once I could eat food, the steroids made me eat ALL the food. I gained all my weight back and then some, and of course it came back not as muscle but as fat. My waistline is noticeably thicker and jigglier now. The highest my weight has gotten was 153, I'm currently at 148. So although I'm only 2 lbs heavier than I was before the flare, my body composition is very different (much more fat and less muscle) so I've gone up a pants size, from a 6 to an 8, and in shirts I've gone from small to medium. I got depressed about that and ended up donating some of my smaller clothes and have been buying clothes in my new, larger size. If I do go back down to my previous size, the good news is that I can sew, so I can take things in and make them smaller. Yay? In the meantime I feel flabby. I had started exercising again once I started LDN, but then my two recent taper fails have kicked my butt and forced me back out of the gym again.