Hey,
So I am kinda new but I notice that the majority of the posters are on Prednisone or have been in the past. And it seems like its a regular drug for them to go on and off ( some americans too). I HATE that drug and after going on it once at the beginning of treatment at 40mg/day for 7 weeks then weaning off to try it again a year or so later and feel worse for having taken it. It seems to cause the disease to come back worse each time I take it. I will never unless I am in ICU take it again. Doctors don't even ask me. How can you guys manage on this stuff?
Right now I am in a huge flare with no meds at all and will not be able to have any for at least 3 months or so ( husbands job thing) but They started with the ASA drugs-while on that Prednisone - nothing did not work, Then to Immuran after 4 months ( time for it to kick in)- nothing, then onto Remicade- worked great for 6 months but then caused me to stop breathing during one of the infusions, next step Humira- never shut the disease down still had the runs and pain just less of it, Cimza- only did the start up of it before insurance quit and now I am on nothing-sick but that is the normal life for me other then the 6 months of remicade remission and this is over almost 5 years.. YUCK at this point I am doubtful that there is any medicine that I will take that will work! whats left?
So I am kinda new but I notice that the majority of the posters are on Prednisone or have been in the past. And it seems like its a regular drug for them to go on and off ( some americans too). I HATE that drug and after going on it once at the beginning of treatment at 40mg/day for 7 weeks then weaning off to try it again a year or so later and feel worse for having taken it. It seems to cause the disease to come back worse each time I take it. I will never unless I am in ICU take it again. Doctors don't even ask me. How can you guys manage on this stuff?
Right now I am in a huge flare with no meds at all and will not be able to have any for at least 3 months or so ( husbands job thing) but They started with the ASA drugs-while on that Prednisone - nothing did not work, Then to Immuran after 4 months ( time for it to kick in)- nothing, then onto Remicade- worked great for 6 months but then caused me to stop breathing during one of the infusions, next step Humira- never shut the disease down still had the runs and pain just less of it, Cimza- only did the start up of it before insurance quit and now I am on nothing-sick but that is the normal life for me other then the 6 months of remicade remission and this is over almost 5 years.. YUCK at this point I am doubtful that there is any medicine that I will take that will work! whats left?