Hi all-
I was born in 1982. I was diagnosed with UC in 1985 and then Primary Sclerosing Cholangitis. I was put on the liver transplant list in 1993 and received my liver transplant in 1995. After being on prednisone for 10 years, I had a proctocolectomy in 1996. I then had 3 more surgeries to re-route my small intestines, create a J-Pouch, and have anastomosis. When I was 21 (in 2004) I developed endometriosis and had a 10cm cyst along with my right fallopian tube removed (it was stretched out and unfunctional). In 2006, I had an 8cm endometrioma removed along with my left ovary removed (it could not be saved). In 2007, my kidney function was very poor and after suffering from severe endometriosis, I was advised to have a hysterectomy. (I could not successfully carry a baby, I was told and was preparing for needing dialysis soon). My kidneys were stressed because I was on very drugs that were toxic to the kidneys but had to take to keep me from rejecting my liver. I also had severe diarrhea from pouchitis (going around 20 times a day), which is why my kidneys were doing so poorly. I had a total abdominal hysterectomy in 2007. After having IV hydration, my kidney function returned to normal. The end of 2007, after having many bowel obstructions, I was diagnosed with Crohn's. In 2008, I went to the ER close to 10 times for bowel obstructions, GI bleeds, and flare-ups. In 2009, I had an abdominal hernia repair. I have been on just about every medication. I was on Remicade last year but it caused me to develop a form of alopecia and my hair and eyelashes fell out and lost its effectiveness.
Whew...I think thats about it. I would love to meet other people with a history like mine.
I was born in 1982. I was diagnosed with UC in 1985 and then Primary Sclerosing Cholangitis. I was put on the liver transplant list in 1993 and received my liver transplant in 1995. After being on prednisone for 10 years, I had a proctocolectomy in 1996. I then had 3 more surgeries to re-route my small intestines, create a J-Pouch, and have anastomosis. When I was 21 (in 2004) I developed endometriosis and had a 10cm cyst along with my right fallopian tube removed (it was stretched out and unfunctional). In 2006, I had an 8cm endometrioma removed along with my left ovary removed (it could not be saved). In 2007, my kidney function was very poor and after suffering from severe endometriosis, I was advised to have a hysterectomy. (I could not successfully carry a baby, I was told and was preparing for needing dialysis soon). My kidneys were stressed because I was on very drugs that were toxic to the kidneys but had to take to keep me from rejecting my liver. I also had severe diarrhea from pouchitis (going around 20 times a day), which is why my kidneys were doing so poorly. I had a total abdominal hysterectomy in 2007. After having IV hydration, my kidney function returned to normal. The end of 2007, after having many bowel obstructions, I was diagnosed with Crohn's. In 2008, I went to the ER close to 10 times for bowel obstructions, GI bleeds, and flare-ups. In 2009, I had an abdominal hernia repair. I have been on just about every medication. I was on Remicade last year but it caused me to develop a form of alopecia and my hair and eyelashes fell out and lost its effectiveness.
Whew...I think thats about it. I would love to meet other people with a history like mine.
