Well, a while after I was started on Aza, I started getting D, which was kind of odd because D was never really one of my flare symptoms, barring before diagnosis. It would sometimes go, and then come back, and I'm just dealing with it.
Today we got a letter in the post from the hospital saying that when I had my colonoscopies in May I *might* have been infected with CRE. So now I'm wondering if it was dormant, and my starting Aza kicked up the infection.
But I don't want to get my hopes up too high. Can an infection like CRE cause loss of appetite? That's about the only other thing I'm experiencing apart from D and weight loss (which is probably because of the appetite loss). My Crohn's pain (which is my indication of a flare) has lessened considerably - some days I'm pain-free!
I have to go have a blood test to check the Aza is working soon, and I also have to give them a stool sample for the CRE. So just to put it out there - is it possible Aza IS working for me and I'm just being hindered, or am I trying to push the fact that I'm failing this med off onto something else? :S
Thanks for any advice you're able to give - or even if you read this at all! :ysmile: You guys are great. By the way - I deliberated the exact place this should be posted for about six minutes. Sorry if I got it wrong!
Today we got a letter in the post from the hospital saying that when I had my colonoscopies in May I *might* have been infected with CRE. So now I'm wondering if it was dormant, and my starting Aza kicked up the infection.
But I don't want to get my hopes up too high. Can an infection like CRE cause loss of appetite? That's about the only other thing I'm experiencing apart from D and weight loss (which is probably because of the appetite loss). My Crohn's pain (which is my indication of a flare) has lessened considerably - some days I'm pain-free!
I have to go have a blood test to check the Aza is working soon, and I also have to give them a stool sample for the CRE. So just to put it out there - is it possible Aza IS working for me and I'm just being hindered, or am I trying to push the fact that I'm failing this med off onto something else? :S
Thanks for any advice you're able to give - or even if you read this at all! :ysmile: You guys are great. By the way - I deliberated the exact place this should be posted for about six minutes. Sorry if I got it wrong!