My daughter has a temporary ileostomy due to her colon being perforated during a colonoscopy. She has had the temp ileostomy since June, and will have it reversed sometime this year. Does anyone here have experience on the recovery time, and what to expect after the reversal??
Hi Mugsy
I took a look at your other posts cause I wanted to know how old your daughter was before I put my lil ole opinion in here :thumleft:
I see she's 17 and is (or was?) being treated at the Mayo clinic in Jacksonville, by the same dr. as my daughter, Dr. Cangemi?
I'm curious if you are still going there ? and who is your surgeon?
Small world for sure !
Anyhow, my daughter as Dustykat said also had a temporary ileostomy and then her reversal just over a year ago.
The surgery was relatively straightforward and much easier on her than the resection that led to the ileostomy in the first place.
She had the surgery on December 13th and returned to Tampa for college the second week of January. It may have been a bit sooner than the doctors, or doctor mom, would have recommended, however she did just fine.
I'm going to copy a few of my excerpts from when I posted after Gab's reversal surgery for you to read ( I don't want to try and go off memory lol)
I hope it gives you a little info, and relief of worry
Please let us know how her surgery goes !
Day 1:
Gab had a pretty good day considering. She is in pain of course, it's to be expected. However, it's nothing compared to the pain she had post surgery in March. I am pleased with that.
Also, she didn't wake up with any extra tubes this time! No catheter, No JP drains, and especially NO OZZIE ! she's already been up and to the restroom to pee a few times ! Also, We can already here grumbling sounds in her bowels! All good stuff
I had a talk with her the other day and was trying to explain to her that she will most likely experience some phantom Ozzie moments since he was around for nine months, and was definitely a part of her every experience. Well, I have lost count at how many times she has told me that she keeps thinking he's still there and reaches down to "quiet" him and realizes it's gone. that and she keeps asking why they are taking so long to take her back and do the surgery and how she just knew it wasn't going to happen Poor girl, I can't wait till her pain meds are lowered and she can remember that she's had the surgery and it IS REAL AND GONE
Day 3:
She's doing great for the most part. Little spikes of a fever here and there, pain is up and down, and the biggest problem until today was her heart rate. The nurse came in the night before last and woke her because her heart rate was 139 while sleeping. They called up an emergency EKG because she seemed to be a bit short of breath and was complaining of chest pain; they also quickly drew some bloods. Everything was "normal", Thank God!, but it took a day and a half for it to lower to normal ranges. It was definitely scary for a bit, especially for Gab as this sent her into major anxiety and panic attack. Which in turn didn't help in trying to lower the heart rate.
But, all seems well with that now !
Her bowels are making all the noises they are supposed to, but no movement just yet. Its causing her some discomfort, but I expect this is normal while it's moving through for the first time.
We're hoping it happens today so we can possible go home tomorrow !
Oh ya, and she went off the of pca pain pump yesterday already, and is now just taking percocet every 4 hours as needed, with Torradol in between for any breakthrough pain if needed
I think I need to read some other resection threads on here so I can have a realistic idea of how this waking up of the bowels really works... And not just the dear surgeons day to day well maybe's lol. He came in today and backed her off of the clear liquids only and told her she's only allowed to sip a little now. Her belly is hard and distended. I'm not worried per say... Just uneducated in this particular department at the moment not for
Long tho! Lol
Day 4:
The train left the station ! (she pooped!) :ylol:
Day 5:
Gab gets to try soft foods today and.... If they settle ok with her ... We're going home !!!
So just a little bit of what it was like for her and I at the hospital for you.
Hope it helps !
After we got home everything was great !
Best of luck !