Hi,
I've just been diagnosed with Crohns and have been browsing the forum and thought I would post as everyone seems so friendly and supportive. Not knowing anyone who has this I thought it would also be helpful to speak to others as I feel a bit alone and confused!
I have been ill for a while as far as I can remember in one way or another with my stomach but the last 8 months have been unbareable with the pains, joint pain, sever fatigue and D. Like many other stories I have read it got to the point where I was to scared to eat for fear of the pain so wouldn't!
I went to the doctors who kept telling me I had an infection/ IBS etc. It was only because I pushed that they finally gave me a colonscopy and even then I had to wait 4 months for that, although I may add all my blood work were coming back as high levels of imflammation they still did not treat me! Anyway finally 3 weeks ago I had my colonscopy and got the diagnosis of Crohns with imflammation in both my large and small intestine! The hospital has now been very apologetic, however it is still very frustrating that it has taken so long! Has this happened to many people? Anyway good news is at least I know now and can start getting better :smile:
They have put me on Pentasa and pred which seems to be working but I still have the pain and my joint pain seems to have increased, is this normal??
They have also put me on a low fibre diet but I honestly dont know how long I need to be on this for! I have cut out wheat and dairy but I am not sure I have to - does anyone have any diet suggestions?? How long I need to do this for? It's a pretty boring diet! I have also cut out drinking but I am desperate for a glass of vino - will I ever be able to drink again? I'm a little scared to try incase everything goes down hill again.
One last thing! What is remission and how will I know if im in it? At the moment it seems like it will never happen....
Thanks for reading
S
I've just been diagnosed with Crohns and have been browsing the forum and thought I would post as everyone seems so friendly and supportive. Not knowing anyone who has this I thought it would also be helpful to speak to others as I feel a bit alone and confused!
I have been ill for a while as far as I can remember in one way or another with my stomach but the last 8 months have been unbareable with the pains, joint pain, sever fatigue and D. Like many other stories I have read it got to the point where I was to scared to eat for fear of the pain so wouldn't!
I went to the doctors who kept telling me I had an infection/ IBS etc. It was only because I pushed that they finally gave me a colonscopy and even then I had to wait 4 months for that, although I may add all my blood work were coming back as high levels of imflammation they still did not treat me! Anyway finally 3 weeks ago I had my colonscopy and got the diagnosis of Crohns with imflammation in both my large and small intestine! The hospital has now been very apologetic, however it is still very frustrating that it has taken so long! Has this happened to many people? Anyway good news is at least I know now and can start getting better :smile:
They have put me on Pentasa and pred which seems to be working but I still have the pain and my joint pain seems to have increased, is this normal??
They have also put me on a low fibre diet but I honestly dont know how long I need to be on this for! I have cut out wheat and dairy but I am not sure I have to - does anyone have any diet suggestions?? How long I need to do this for? It's a pretty boring diet! I have also cut out drinking but I am desperate for a glass of vino - will I ever be able to drink again? I'm a little scared to try incase everything goes down hill again.
One last thing! What is remission and how will I know if im in it? At the moment it seems like it will never happen....
Thanks for reading
S