Hi guys,
I realise there are probably heaps of threads out there on this but wanted to ask anyway...
I just got off the phone to my GI and he now thinks Im having a bad reaction to Imuran. Am halfway thru my fifth week on it and over the last 5 days have started to go back down hill. Started with nausea only in the morning for a few hours, then slowly started to increase until the last couple of days have been all day, pain has come back really bad in my right side of my abdo and then 3 days ago I got a pimply rash on my legs, back, neck and face not bad or all over and could have been a heat rash as I live in a really hot climate, it is nearly gone now tho.
Yesterday he put me back on pred as I came off it 8 days ago and he thought maybe I didn't have the flare under control, he said cause I had been on Imuran for over 5 weeks doubted it was a reaction but sent me for blood work to be on the safe side. Then today my bloods came back with my inflammation markers high which is not normal for me as the whole time I have been suffering/sick my markers have been normal even with all my inflammation (can't be explained why). He has told me to stop all drugs even the pred as I have only taken one tablet so far in this course and too see what happens, am so scared of getting worse but know I have to do it otherwise the reaction could get worse. He did say it would only be for a few days and if I get really bad then to go back on the pred.
Sorry such a long novel but wanted to give the full story before getting to the point... finally has anyone else had a similar experience on imuran? Im now wondering what drug is next for me?
Thanks everyone!!
I realise there are probably heaps of threads out there on this but wanted to ask anyway...
I just got off the phone to my GI and he now thinks Im having a bad reaction to Imuran. Am halfway thru my fifth week on it and over the last 5 days have started to go back down hill. Started with nausea only in the morning for a few hours, then slowly started to increase until the last couple of days have been all day, pain has come back really bad in my right side of my abdo and then 3 days ago I got a pimply rash on my legs, back, neck and face not bad or all over and could have been a heat rash as I live in a really hot climate, it is nearly gone now tho.
Yesterday he put me back on pred as I came off it 8 days ago and he thought maybe I didn't have the flare under control, he said cause I had been on Imuran for over 5 weeks doubted it was a reaction but sent me for blood work to be on the safe side. Then today my bloods came back with my inflammation markers high which is not normal for me as the whole time I have been suffering/sick my markers have been normal even with all my inflammation (can't be explained why). He has told me to stop all drugs even the pred as I have only taken one tablet so far in this course and too see what happens, am so scared of getting worse but know I have to do it otherwise the reaction could get worse. He did say it would only be for a few days and if I get really bad then to go back on the pred.
Sorry such a long novel but wanted to give the full story before getting to the point... finally has anyone else had a similar experience on imuran? Im now wondering what drug is next for me?
Thanks everyone!!