- Joined
- Oct 1, 2012
- Messages
- 100
Hello All,
I am new to this forum so I will give a brief history before I ask my main queston. I am a female 32 years old with 4 children. I was diagnosed with Crohn's disease in 2009 but had symptoms from the age of 16. My 2 1/2 year old son got very sick in FEB of this year 2012. We thought it was the flu because he had fevers, vomitting and diahrrea. After months of these symptoms, weight loss, very pale skin, lethargy, mutliple doctor visits, tests, antibiotics and a referral to a GI specialist they found he had a campylobacter infection. After treatment with correct antibiotics in May he had fevers start back up again and had them daily for the next month. He had a upper EGD and colonoscopy. Some ulcers and gastritis, possible Crohn's. He was admitted into the hospital after seeing an immune deficiency doctor and Rhuematologist with no diagnosis. He had alot of blood work and a CT scan and was monitored for his daily fevers while in the hospital. He was also seen by infectious disease doctors while int he hospital to try and figure out what was going on with him. No real conclusion other that possible crohn's disese. He was put on steriod taper for 2 months. He seemed to do better with energy and increased appetite while on steroid. Since being off of them his fevers have started again, stomach pain and lethargy has set back in. Here is my question? Do any of your children with Crohn's have recurrent fevers about every few weeks? When the fevers are happening his symptoms get alot worse. I have never had the high recurrent fevers with my Crohn's but understand that every persons disease differs a little. I just feel that maybe he doesn't have this disease and they are missing something. My son is now 3 years old. Any help would be greatly appreciated.
Thank you
I am new to this forum so I will give a brief history before I ask my main queston. I am a female 32 years old with 4 children. I was diagnosed with Crohn's disease in 2009 but had symptoms from the age of 16. My 2 1/2 year old son got very sick in FEB of this year 2012. We thought it was the flu because he had fevers, vomitting and diahrrea. After months of these symptoms, weight loss, very pale skin, lethargy, mutliple doctor visits, tests, antibiotics and a referral to a GI specialist they found he had a campylobacter infection. After treatment with correct antibiotics in May he had fevers start back up again and had them daily for the next month. He had a upper EGD and colonoscopy. Some ulcers and gastritis, possible Crohn's. He was admitted into the hospital after seeing an immune deficiency doctor and Rhuematologist with no diagnosis. He had alot of blood work and a CT scan and was monitored for his daily fevers while in the hospital. He was also seen by infectious disease doctors while int he hospital to try and figure out what was going on with him. No real conclusion other that possible crohn's disese. He was put on steriod taper for 2 months. He seemed to do better with energy and increased appetite while on steroid. Since being off of them his fevers have started again, stomach pain and lethargy has set back in. Here is my question? Do any of your children with Crohn's have recurrent fevers about every few weeks? When the fevers are happening his symptoms get alot worse. I have never had the high recurrent fevers with my Crohn's but understand that every persons disease differs a little. I just feel that maybe he doesn't have this disease and they are missing something. My son is now 3 years old. Any help would be greatly appreciated.
Thank you