• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Reloading dose of Stelara....any success?

C

chronic_rambles

Hi All,

I originally started stelara in dec 2018 with the loading dose then 90mg every 8 weeks. In April I started getting break-through symptoms at the 6 weeks point then 5 week point. My GI upped the dose to 90mg every 4 weeks and that worked for a few months and I felt great. Then in September I got break-through symptoms at 3.5 week point then this month just before the 3 week point. I took my needle and it's taken a week for it to even start to kick in and I'm still not 100% and am having symptoms.

My GI doctor is now recommending a "reload dose" via infusion and then continue the 90mg every 4 weeks. Has anyone had this done and regained their responsiveness to stelara or is this just a waste of my efforts here?

Thanks for any input.
 
Jo-mom

Jo-mom

Location
Toronto, Canada
Hi there, my son was in a similar situation with Remicade. He had to have his dose reloaded because he was having symptoms before his next infusion date. After reloading, and when it came time to have his regular intervals, he couldn't make it to the next infusion date, and again the GI ordered another reloading dose. He ended up having his dose increased to the higher level and frequency decreased and things have been fine.

I think it's great that you are getting another reloading dose of stelara and then frequency is reduced. This might be exactly what you need to keep the momentum.

Good luck.
 
N

newdiagnosis

chronic_rambles said:
Hi All,

I originally started stelara in dec 2018 with the loading dose then 90mg every 8 weeks. In April I started getting break-through symptoms at the 6 weeks point then 5 week point. My GI upped the dose to 90mg every 4 weeks and that worked for a few months and I felt great. Then in September I got break-through symptoms at 3.5 week point then this month just before the 3 week point. I took my needle and it's taken a week for it to even start to kick in and I'm still not 100% and am having symptoms.

My GI doctor is now recommending a "reload dose" via infusion and then continue the 90mg every 4 weeks. Has anyone had this done and regained their responsiveness to stelara or is this just a waste of my efforts here?

Thanks for any input.
Click to expand...
Chronic_Ramgles, any luck with the reloading dose of stelara?
 
You must log in or register to reply here.
Top