Hello everyone,
I’m new here. Was on Remicade for about a year and a half when, in late October, I started to get itchy rashes, first on my scalp, and then the rest of my body. It took me a while to realize it was due to Remicade, since I wasn’t expecting it. My last infusion was late April. It’s been 2.5 months and the rashes don’t seem to be going away. In fact, I’m getting them in new spots even now. I’m miserable. Doctors are treating it like eczema, and dismissing the connection to Remicade. Steroids offer temporary relief and things go back to the way they were if I stop. Dupixent has caused the disgusting oozing to cease. Antibiotics have cleared infections. But, I’m still disfigured by these dark rashes all over my body. I’m hoping someone who’s been through this can give me hope that this will subside and I’m not destined to live with this for the rest of my life
I’m new here. Was on Remicade for about a year and a half when, in late October, I started to get itchy rashes, first on my scalp, and then the rest of my body. It took me a while to realize it was due to Remicade, since I wasn’t expecting it. My last infusion was late April. It’s been 2.5 months and the rashes don’t seem to be going away. In fact, I’m getting them in new spots even now. I’m miserable. Doctors are treating it like eczema, and dismissing the connection to Remicade. Steroids offer temporary relief and things go back to the way they were if I stop. Dupixent has caused the disgusting oozing to cease. Antibiotics have cleared infections. But, I’m still disfigured by these dark rashes all over my body. I’m hoping someone who’s been through this can give me hope that this will subside and I’m not destined to live with this for the rest of my life
