Remicade - Tingling feeling?

[PatrickL]

I've had 2 infusions of Remicade for Crohn's, the 2nd about 3 weeks ago, and just 2 days ago I've been getting this wierd buzz/tingling feeling over my whole body. It comes on near noon and lasts until I either take a depressant of some kind (alcohol, cyclobenzaprene) or finally fall asleep. I've checked my diet, I'm actually drinking less coffee (16 oz) than I used to (24 oz) so I don't think it's related to that unless a caffeine interax was inevitable. I'm taking in about 1800 cals a day and eat healthy 80% of the time. I've also noticed some muscle soreness today, mainly large leg muscle groups.

Has anyone out there had a similar experience?
Did you contact your doctor?
What happened to resolve?

Thanks for the help!

-Patrick

 

[SarahAnne]

Sorry I can't be of any help, I occasionally get a tingling in my extremities but I'm pretty sure that is related to poor circulation.

It doesn't sound like anything I've heard of, if it was me I would keep an eye on it and mention it to my doctor just to be on the safe side.

Let us know what turns up, I'm kind of curious!!

 

[kerilecrenski]

hey ive just been experiencing that right now...i was on 5mg of remicade and going every 8 weeks...now my GI increased it to 10 mg and every 4 weeks...on the 3d and last time i got my infusion i started getting tingling/fuzzy feeling in my arms/legs/hands/feet...i emailed him but it was late...so i called the umass ER and the GI on call said it could be too much remicade...my gi emailed me back the next day saying i needed to see a neurologist specializing in MS neurology...however i already see a neurologist for temporal lobe epilepsy so i naturally called him right away...he talked to the MS neurologist and they both seem to think it is paraesthesias...just a side effect because the remicade is at such a high dose going frequently...what other symptoms are you getting?

 

[PatrickL]

Well, I'm on the bare minimum.. 3.7mg/kg. Fortunately, this "whole body buzz" I was getting has subsided. However, my 3rd infusion is this Friday, 4/20. I'm a little nervous about it coming back, which, if it does, will signal my end with Remicade. I do way too many activities to be hampered by that feeling if it comes back. I don't even want to be on the drug anyway as I don't believe we know anything about the 20-30 year side effects of taking this medication.