• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Remicade vs generic Infliximab

going from Remicade (close to 10 years) to the generic Infliximab.. anyone have any issues? new insurance will not cover brand name Remicade.. Dr. says its the same but would love to here from those who know. thank you!
 

Lisa

Adminstrator
Staff member
Location
New York, USA
If you do a search on the forum you will find some here who have been switched over with varying levels of success.
 
My insurance forced me to switch earlier this year from Remicade to Inflectra. I had been on Remicade for almost 3 years with great results. Around the time of my last infusion before I was forced to switch from Remicade to Inflectra, my inflammatory markers were the lowest they ever were. But once I made the switch to Inflectra, I had all sorts of issues. My inflammatory markers went up to the highest they ever been and was getting a lot of loose stools and diarrhea.

My doctor decided to check my levels of medication and they were slightly low at first, so they just increased the frequency from 7 to 6 weeks. That didn't help, so they decided to up the dosage from 5mg/kg to 10 mg/kg. As I type this, I am getting my first infusion since they decided to increase the dosage to 10mg/kg. So we'll see how it goes. I think it should get me stable enough again, but time will tell.

Basically, I would be extra cautious if you make the switch to a generic or biosimilar. Watch out for any signs of a flare.
 
Location
San Diego
My doctor decided to check my levels of medication and they were slightly low at first, so they just increased the frequency from 7 to 6 weeks. That didn't help, so they decided to up the dosage from 5mg/kg to 10 mg/kg. As I type this, I am getting my first infusion since they decided to increase the dosage to 10mg/kg. So we'll see how it goes. I think it should get me stable enough again, but time will tell.
Your insurance company clearly wanted to save themselves money by forcing you to switch to the cheaper biosimilar drug. But looks like it might end up costing them the same or even more money, because you've had to use more drug more often to try to stay in remission. And while they are cheaper than the branded drugs, biosimilars are still pretty expensive.

Might be a case of a penny wise and pound foolish insurance company.
 
Your insurance company clearly wanted to save themselves money by forcing you to switch to the cheaper biosimilar drug. But looks like it might end up costing them the same or even more money, because you've had to use more drug more often to try to stay in remission. And while they are cheaper than the branded drugs, biosimilars are still pretty expensive.

Might be a case of a penny wise and pound foolish insurance company.
That's exactly the first thing I thought when my doctor told me that they were increasing the dosage to 10mg/kg. The insurance is only screwing themselves.

Since I am on my parent's insurance policy, I myself really don't have much say in all of this. I wish I could go back to Remicade, but that would take a miracle at this point. But once I get my own insurance policy, I'm definitely getting different insurance than what my parents have.
 
Top