Remicade wearing off...oops

[Kittee]

Oops...

Looks like at week 6 of a 8 week separation.

Aug 12 - Oct 7th

On Sept 22nd, my Crohns symptoms came back in full effect.
The week of 15th-22nd I started getting nauseous again and then gradually it progressed into worsening trips to the restroom.

Yesterday was a 4 trip today and today is already up to 5 and it's just 2:30pm.

I'm going to guess that 8 weeks between treatments is too big of a gap for me atm.

Anyone else experience this?

The good news is that I've lost weight again lol.

 

[Kittee]

Thanks Mike!

My appt is Tues so I'm just going to wait it out until then. I did "enjoy" a full night of UP and DOWN to the restroom last night though. UGH.

I didn't have that problem before with my Crohns, the GI doc said I was very lucky. Well this time, you bet your butt (no pun intended) that I have night time problems. Going to be a very long day at work and I'm going to be wearing a path from my desk to the office RR again.

 

[Kittee]

OH yeahhh...swallowed glass feeling came back tonight...woot! *sarcastic.*

 

[Kittee]

Hey Pen! *hugs*

Sadly the trips to the bathroom help me lose weight lol.

 

[Kittee]

Today pretty crappy. I'm just biding my time until Tues. And another infusion. You?

 

[Kittee]

This was my first 8 week stretch so just a few months. Maybe 4 months-ish.

I hope you don't have to have surgery. They say once you start that you usually have to go back for more and more. =(

 

[MCPayne]

I thought Remicade was supposed to be every six weeks after the initial doses, but I could be mistaken. I was on Remicade back some time ago during high school, and only got through the first 3 infusions before my flare ups and symptoms came back. I'm supposed to start Humira on Thursday, and am hoping that will work. I don't mean to "alienate" anybody, but it seems for the most part, most people on this thread seemed to have success with it. I feel like my Crohn's isn't as bad as some people's, as it is only in the lower part of my colon, and the only symptom I have is bloody loose stools, but it would be nice if Humira could get my Crohn's completely into remission.

 

[Kittee]

Hmm not sure, I"m on a 8 week spread.

Glad your isn't too bad and I hope you feel better soon.

 

[Kittee]

Ah Remicade tomorrow morning. Yaay. Though I hate being there for 8am. YUCK!

 

[ls1krab]

Hey Kittee, what improvements exactly do you see after you have your Remicade infusions? Also, how long does it take for you to see these improvements (next day, etc.)?

 

[Kittee]

Hi Is1krab,

It took me 3 infusions before I saw any noticeable improvement. So about 6 weeks.

 

[Kittee]

Well, the hospital messed up a little today. They were supposed to take blood work BEFORE the infusion to check if I'm developing antibodies but they did not do so. So I have to go back in, in 4 weeks. Doc thinks my joint pain may be because I'm developing antibodies. =/

 

[ThatGuy2006]

I know I just came out of left field with this but I do remember having joint pain before coming off of Remicade (built up antibodies). I was on the max dose and getting it once every 4 weeks and it seemed like it would only last for two, thats when I decided to try something else but the Humira has seemed to only make things worse. I really hope things work out for you though! Remicade was an awesome drug when it did work for me!

 

[ls1krab]

Hey Kittee, (it's Ls1krab, btw) so it took about 6 weeks before you saw any improvement. Specifically, what did you notice improving though?

 

[Kittee]

No more "swallowed glass" feeling after eating and over time my trips to the rest room and nausea subsided.