Hi everyone,
I have read quite a bit about crohns & kidney stones, however I have a different kind of kidney problem!
I was diagnosed with mild crohns in February of this year, however by april I started having instances of SEVERE flank pain on my right side & blood in the urine. Of course the ER automatically assumed kidney stones, however, despite numerous MRI's xrays and ultrasounds no stone was ever found, still I continued to present to the emergency department every few weeks with the severe pain and frank hematuria.
Last month I presented to the ER once again with severe pain & hematuria , they did a contrast xray and discovered a blockage in my right kidney. They did a scope and discovered that several of my kidneys papillary had died and were blocking the urine from leaving my kidney. They put in a stent to unblock the kidney which had to be removed 2 weeks later due to severe infection, 6 days in hospital on IV antibiotics and fluids later, I got out of hospital and am just waiting for yet another episode....
Heres the real mystery of it all... Renal papillary necrosis is so rare in people under the age of 65 that I am the FIRST case my specialists (and their collegues) have EVER seen in a 28 year old... AND renal papillary necrosis normally effects BOTH kidneys... Not just one...
I am being bounced from urology specialists to renal specialists And back again, meanwhile due to these extra issues my gastroenterologist is starting to wonder if my crohns is in fact something else....
Has anyone had or heard of a similar issue before??
Jessey
I have read quite a bit about crohns & kidney stones, however I have a different kind of kidney problem!
I was diagnosed with mild crohns in February of this year, however by april I started having instances of SEVERE flank pain on my right side & blood in the urine. Of course the ER automatically assumed kidney stones, however, despite numerous MRI's xrays and ultrasounds no stone was ever found, still I continued to present to the emergency department every few weeks with the severe pain and frank hematuria.
Last month I presented to the ER once again with severe pain & hematuria , they did a contrast xray and discovered a blockage in my right kidney. They did a scope and discovered that several of my kidneys papillary had died and were blocking the urine from leaving my kidney. They put in a stent to unblock the kidney which had to be removed 2 weeks later due to severe infection, 6 days in hospital on IV antibiotics and fluids later, I got out of hospital and am just waiting for yet another episode....
Heres the real mystery of it all... Renal papillary necrosis is so rare in people under the age of 65 that I am the FIRST case my specialists (and their collegues) have EVER seen in a 28 year old... AND renal papillary necrosis normally effects BOTH kidneys... Not just one...
I am being bounced from urology specialists to renal specialists And back again, meanwhile due to these extra issues my gastroenterologist is starting to wonder if my crohns is in fact something else....
Has anyone had or heard of a similar issue before??
Jessey