soupdragon69
ele mental leprechaun
Hey everyone,
Thought I would mention I was chatting to my gastro nurse yesteday during my remicade about having a sore mouth alot more of late.
Was telling her I was getting ulcers but also that my mouth in general felt like it had been scalded. Toothpaste burns no matter how mild I have it for instance. Can only tolerate warm drinks etc.
She asked if I had looked at benzoates - which I had excluded previously but gradually let creep back into my diet.
Also asked if I ate alot of cinnamon.
She was telling me that another patient she sees had the same problems as me and they asked them to go benzoic acid and cinnamon free in their diet.
Apparently it worked and their mouth has healed.
So I guess for me its back to more restrictions again and see how things go eh?
Will keep you posted.
Things are pretty manic still for me on top of the fact that I just literally couldnt get online since moving in with Duncan. I kept trying with his comp but the site kept chucking me out for some reason. Anyway, am back on my own system now and things are fine.
Work is good. Am enjoying the new job. Might at some point reduce my hours but will see how things go.
Have been referred to a specialist pain team in London so waiting to hear from them. Also going through more tests to rule out other autoimmune issues. Might need to have surgery on my shoulder too at some point as they think I may have a deep muscle tear that has never healed!
Duncan is having surgery on both hands today week. On top of this our kitchen is currently being replaced so we are eating out/take away every night! LOL
Anyway, thought I would do the above post in case anyone else had any thoughts on it.
Hope you are all doing ok. Have missed you all!!
((hugs))
Thought I would mention I was chatting to my gastro nurse yesteday during my remicade about having a sore mouth alot more of late.
Was telling her I was getting ulcers but also that my mouth in general felt like it had been scalded. Toothpaste burns no matter how mild I have it for instance. Can only tolerate warm drinks etc.
She asked if I had looked at benzoates - which I had excluded previously but gradually let creep back into my diet.
Also asked if I ate alot of cinnamon.
She was telling me that another patient she sees had the same problems as me and they asked them to go benzoic acid and cinnamon free in their diet.
Apparently it worked and their mouth has healed.
So I guess for me its back to more restrictions again and see how things go eh?
Will keep you posted.
Things are pretty manic still for me on top of the fact that I just literally couldnt get online since moving in with Duncan. I kept trying with his comp but the site kept chucking me out for some reason. Anyway, am back on my own system now and things are fine.
Work is good. Am enjoying the new job. Might at some point reduce my hours but will see how things go.
Have been referred to a specialist pain team in London so waiting to hear from them. Also going through more tests to rule out other autoimmune issues. Might need to have surgery on my shoulder too at some point as they think I may have a deep muscle tear that has never healed!
Duncan is having surgery on both hands today week. On top of this our kitchen is currently being replaced so we are eating out/take away every night! LOL
Anyway, thought I would do the above post in case anyone else had any thoughts on it.
Hope you are all doing ok. Have missed you all!!
((hugs))