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Self confidence.

C

Cactusgirl

I’m 17 years old and have recently been diagnosed with crohns diseases although I’ve been struggling for 4 years now. Recently I’ve developed two fistulas and have had reoccurring abscess, I have two setons in place now. I start infliximab soon and then i’m hoping that the setons will be remove and my symptoms will be minimal. Because of my age I find it difficult to talk about as it’s not something my friend would understand, and I can already tell my parents are worried about me but recently I’ve been feeling very overwhelmed and need someone to talk to I’ve noticed a change in my emotions and I have major self confidence issues as I often struggle to walk long distances and I worry about the setons being unattractive especially as I’m in a relationship. He’s very supportive and assures me he isn’t bothered but I find it hard to believe. I guess I just wondered if this is a normal feeling, I don’t have any experience like this but I feel worried about it all and worry that it’s effecting my life in all other aspects as I’m hesitant about what will happen in he future or make excuses when going out as I’m worried I won’t be near a toilet. Then in later life with university as I’ll be away from the network of friends I trust and who try to help me. I think I’m just needing someone to talk to and to find out if what I’m feeling is normal. Thank you for reading my story.
 
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cmack

cmack

Moderator
Staff member
Location
Southern British Columbia
Talk to me here any time. I have had several setons and a few abscesses, fistulas etc. You can pm me if you would rather talk in private as well. Welcome to the forum.
 
Scipio

Scipio

Well-known member
Location
San Diego
Welcome, Cactusgirl,
You have come to the right place. Because pretty much everyone here or (their close relative) is going through some version of same things you are experiencing. And I'm here to tell you that once you find the right combination of medication, diet, and healthy positive lifestyle, your disease will likely be very well controlled.

So be determined and focused. Work closely with your gastroenterologist. You can use this site as a good source of information and support. And you can say absolutely anything here about your disease and not feel embarrassed, because we are all in the same boat.
 
C

Cactusgirl

Scipio said:
Welcome, Cactusgirl,
You have come to the right place. Because pretty much everyone here or (their close relative) is going through some version of same things you are experiencing. And I'm here to tell you that once you find the right combination of medication, diet, and healthy positive lifestyle, your disease will likely be very well controlled.

So be determined and focused. Work closely with your gastroenterologist. You can use this site as a good source of information and support. And you can say absolutely anything here about your disease and not feel embarrassed, because we are all in the same boat.
Click to expand...

Thank you, I’m hoping once on the infliximab it’ll settle.
 
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