I used to lurk here (like 10 years ago) while my husband was dealing with a massive Crohn's flare. He's been mostly in remission since surgery in 2008. He was on Remicade for a year after surgery and then switched to Humira, which he is still on.
Anywho...about 2 years ago, he started feeling really exhausted for no reason (he's an athlete) and had a bunch of blood run and had signs of severe anemia and was rushed in for a series of infusions. That worked for about a year and then about 6 months ago, started feeling the same way. Blood tests showed basically zero iron and he went in for another set of infusions. Those didn't seem to last very long and he had ANOTHER series of 6 infusions about 2 months ago.
He just got his blood tests back today because he's been feeling faint and his iron level is at a 5. I can't remember the other markers, but they are VERY low. He's going to be referred to a hematologist as a next step, but I'm super worried about him. He had a double scope last month and it showed very little active disease. He feels great other than the anemia issues.
Is there anyone who has dealt with similar issues. Iron infusions not working? We are worried about other conditions (cancer being one) and I'm just freaked out. We just built a house and had a baby, my Dad was just diagnosed with Lymphoma, and my Mom had breast cancer this summer. I'm fried from all this and just want to get my hubby healthy again. Looking for anyone with similar experience.
Anywho...about 2 years ago, he started feeling really exhausted for no reason (he's an athlete) and had a bunch of blood run and had signs of severe anemia and was rushed in for a series of infusions. That worked for about a year and then about 6 months ago, started feeling the same way. Blood tests showed basically zero iron and he went in for another set of infusions. Those didn't seem to last very long and he had ANOTHER series of 6 infusions about 2 months ago.
He just got his blood tests back today because he's been feeling faint and his iron level is at a 5. I can't remember the other markers, but they are VERY low. He's going to be referred to a hematologist as a next step, but I'm super worried about him. He had a double scope last month and it showed very little active disease. He feels great other than the anemia issues.
Is there anyone who has dealt with similar issues. Iron infusions not working? We are worried about other conditions (cancer being one) and I'm just freaked out. We just built a house and had a baby, my Dad was just diagnosed with Lymphoma, and my Mom had breast cancer this summer. I'm fried from all this and just want to get my hubby healthy again. Looking for anyone with similar experience.