Hi everybody,
I've been told i've a severe ileal crohn's as I have many pieces of my ileum subject to inflammation and strictures. I have 2 fibrotic strictures, and I had already one surgery for strictureplasty 5 years ago because of multiple stricutres (at least 7). I had no idea my case what that serious and severe as I had no symptoms for many years (I got diagnosed 18 years ago).
Now my gastro is a bit worried as he says in case of surgery and resection it could mean i'd loose maybe 1-2 feet or more of small bowel, and the ileum is vital. I've been on entyvio for 6 months, and it shows efficacy, but i'm a bit worried about the general situation and how it could evolve as i'm only 34.
Is there anyone with similar experience or history that could share how they manage their disease, and how's life after ileal resections?
I've been told i've a severe ileal crohn's as I have many pieces of my ileum subject to inflammation and strictures. I have 2 fibrotic strictures, and I had already one surgery for strictureplasty 5 years ago because of multiple stricutres (at least 7). I had no idea my case what that serious and severe as I had no symptoms for many years (I got diagnosed 18 years ago).
Now my gastro is a bit worried as he says in case of surgery and resection it could mean i'd loose maybe 1-2 feet or more of small bowel, and the ileum is vital. I've been on entyvio for 6 months, and it shows efficacy, but i'm a bit worried about the general situation and how it could evolve as i'm only 34.
Is there anyone with similar experience or history that could share how they manage their disease, and how's life after ileal resections?