Not so good , I’m in tpn 14 hours every day , prior to surgery I never imagine I was going to end up with just three Ft if small intestine I’m still in shock I’ll have stayed with my inflamed fiztulixed guts if I knew I was going to be like thisHi cathy, how are u dealing with it then?
I know I ask and he said there was no way to know beforehand in the Mri I did 5 months prior didn’t say how long it was ..., I’ve been eating that’s not the problem is that all comes out mostly undigested because is so short so I’m like consistently hungry,Understood.. it's shocking your docs and surgeon didn't alert you on risk of sbs before the surgery.
Is there no way at all your bowel can tolerate normal food now?
Vionex is for adults
Neocate jr tastes very foul
But Ds can tolerate the chocolate orally
Needs to be very cold (not frozen )
Pinch you nose at first till you get used to the taste
And use a straw to bypass the taste buds
After a few days Ds could drink 16 oz quickly with a straw warm if needed
But at first an oz was difficult
He is 15 -so technically only good till age 13