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Should I have a ileostomy reversal?

Hello :)

I had an emergency ileostomy in June 2020 due to a perforation, they removed a small amount of small and large bowel around 15/20cm i think. I have been offered a reversal and initially I was certain I wanted it, but now after reading a few stories and my surgeon reading all the risks i.e incontinence I am worried about my decision.

Before my perforation I only suffered with pain and not diarrhoea, so I’m terrified i’ll lose my quality of life living on the toilet. I have adapted well to a stoma but I am 26 years old and the thought of living the rest of my life with a stoma is a bit sad.

With crohns i know it’s a fact i will get ill again. I feel like if I keep the stoma it’s sort of treatment for the future that i’m pre-emptively keeping in preparation for toilet troubles. But it might never happen! I might be able to control my bowels well and not have diarrhoea all the time. I just feel like it’s a risk.

I’m posting to see if anyone else has struggled with this decision and what you did? also how is life after your reversal? are you happy with your decision?

Thanks,
KatieDory
 
I had emergency resection and ileostomy in May 2017 and had the reversal in November 2017. Glad I had it reversed. The Crohn’s came back within a few months so have been on various drugs since then. I was 38 at the time.
For me the longer I can go without needing a stoma again the better, my skin hated the bag adhesive so I had problems there. Also the more intestines you have the better you can digest food and get the nutrients out (or so I understand).
No problems with diarrhoea or incontinence.
Good luck whatever you decide
 
I had emergency resection and ileostomy in May 2017 and had the reversal in November 2017. Glad I had it reversed. The Crohn’s came back within a few months so have been on various drugs since then. I was 38 at the time.
For me the longer I can go without needing a stoma again the better, my skin hated the bag adhesive so I had problems there. Also the more intestines you have the better you can digest food and get the nutrients out (or so I understand).
No problems with diarrhoea or incontinence.
Good luck whatever you decide
Thanks for replying :)
Can i just ask what part of the bowel you had removed? Ive been told that if you have a significant piece of large bowel removed your more likely to have diarrhoea as water is not absorbed.
 
Sorry for slow reply. My resection was small intestine, terminal ilieum I think?
I’m not sure how long the large intestine is, I gues the proportion you would have left might be relevant?
 
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