Hello All,
I also posted this on Fistula Support Group but wanted to consult here as well. I previously was on Remicade and switched to Humira last December (2013).
Just writing to share my experience with my fistula that has been so resilient and unpredictable. How I am responding resembles a sine-curve with ups and downs.
Twice in the last 4 months, the fistula seemed like it was almost healed and then started getting worse again. First, when I started Humira and my Doctor was so excited that he thought I was ready to have my seton removed. The fistula started getting worse again before I could even see the surgeon. After doubling the 6MP dosage to go along with Humira, I started seeing improvement again over a period of two months. My doctor saw me a couple of weeks ago and said that it seemed like the fistula was fully healed. I then scheduled an appointment for 04/22/2014 (tomorrow) with my surgeon to hopefully get the seton removed. Since 1 week, the fistula started getting worse all over again pretty much to the state it was several months ago accompanied by a severe debilitating pain over the weekend.
In addition to the literal pain, this pendulum like hope and distress is bringing me down. Wondering if anyone had such cycles of improvement and deterioration and what the eventual outcome was.
Thanks in advance.
I also posted this on Fistula Support Group but wanted to consult here as well. I previously was on Remicade and switched to Humira last December (2013).
Just writing to share my experience with my fistula that has been so resilient and unpredictable. How I am responding resembles a sine-curve with ups and downs.
Twice in the last 4 months, the fistula seemed like it was almost healed and then started getting worse again. First, when I started Humira and my Doctor was so excited that he thought I was ready to have my seton removed. The fistula started getting worse again before I could even see the surgeon. After doubling the 6MP dosage to go along with Humira, I started seeing improvement again over a period of two months. My doctor saw me a couple of weeks ago and said that it seemed like the fistula was fully healed. I then scheduled an appointment for 04/22/2014 (tomorrow) with my surgeon to hopefully get the seton removed. Since 1 week, the fistula started getting worse all over again pretty much to the state it was several months ago accompanied by a severe debilitating pain over the weekend.
In addition to the literal pain, this pendulum like hope and distress is bringing me down. Wondering if anyone had such cycles of improvement and deterioration and what the eventual outcome was.
Thanks in advance.