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So i'm new here and really just fed up with it :(

So i have recently been told that i have crohns disease. And in a sence i believe i've always had it and they never really looked into it. But it just got worse recently which is why they fpund out. But i have no appetite. Ill be hungry and then when it is time to eat ill change.my.mind and get sick to.stomach. And i stay tired constantly. I mean really tired. I would just love to lay arpund all day and sleep. Lol. But thats the main thing i cant stand. I want energy again. And to be pain free. My pain.also shoots to my back sometimes. Does anyone.feel this way??
 

nogutsnoglory

Moderator
I like your username and can totally relate. This illness robs you of so much people take for granted. I know how hard it can be to eat when feeling this way but can you force yourself to eat or drink some supplement shakes like Ensure? It's a downward spiral if you don't give your body the nutrition it needs. Are you on any meds for your crohn's?
 
I was just put.on.meds the other day and they make me reallytired. I.havent tried ensure. I.was thinking about it. Its just so.hard to make.myself eat. I have.meds for the oozy feelings but they dont work. They changed the wrong medicine and gave me the same fatigue medicine. :( i have a.gi appoitment on.the 23rd and im going to.tell them.hpw i feel
 
I empathize with you, I am exhausted constantly (still trying to hold down a job- proving very difficult)...
I have no appetite and literally force myself to eat, I find the easiest for me is the v8 fruit and vege drinks... Gentle on my stomach, and it's a drink...
I'm in limbo at the moment despite 2 Gp's diagnosing me with it, but the specialist won't confirm until I have an MRI... And also testing me for sacromilitis....he also doesn't want me taking anything but paracetamol...which does nothing...
I have dreams and want things in my life and I hate what this has done.. I hate not knowing...


Sent from my littlefishes
 
Yeah, some days are good and some days are bad. Like the medicine i was recently prescribed isnt doing me any better with the tiredness. Im now taking.one pill a day until i get to.the gi doctor. I mean i have house chores so.we cant really be tired 24/7. Lol. Ive noticed if i am having a bad day with my stomach that is usually qhen im just plain tired. And i feel like a emotional rollercoaster. Lol. Im hopimg since ive.just found out that it straightens out after i get medicine that works. Sorry for so many typos.
 
And another thing does anyone ever feel sore on your insides. Like the bottom of your stomach but like your intesines?? I mean on a really bad i.have this feeling. And its quite miserable when i go.to.the bathroom. To much info. But when i.ask someone this they always look.strange at me.
 
I don't know if it's the same feeling, but I feel like there is an alien inside of me and it hurts... When I stand and walk it feels like my stomach is just going to fall off...so I hold it in place...


Sent from my littlefishes
 
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