I'm joining this group because my young adult son (25 yrs old) was recently hospitalized and diagnosed with Crohn's and UC.
We are very close so I have started researching to find out everything I can so I can help him with his journey into Crohn's and UC and live as normal life as possible with both.
Before he was diagnosed he became deathly ill. We went to the ER several times and he was either just sent home or given an IV and sent home. After 3 such visits my husband called a hospital in a neighboring city and had a tantrum on the phone which prompted them to ask us to immediately bring him in and they would see what they could do... We took him in, they immediately admitted him and the GI showed up in about 30 minutes - they did an emergency Colonoscopy and Endoscopy because the GI felt my son wasn't going to make it another day....that saved his life.
Now we are trying to navigate this whole new way of life for him. I've done extensive research on diet etc and being celiac myself nutrition and tasty food isn't an issue.
His most recent blood test came back low RBC and low Hemocrit so we are researching to find what supplements people with Crohn's take to help with anemia.
Any and all advice is welcome.
I look forward to being a part of this group!
We are very close so I have started researching to find out everything I can so I can help him with his journey into Crohn's and UC and live as normal life as possible with both.
Before he was diagnosed he became deathly ill. We went to the ER several times and he was either just sent home or given an IV and sent home. After 3 such visits my husband called a hospital in a neighboring city and had a tantrum on the phone which prompted them to ask us to immediately bring him in and they would see what they could do... We took him in, they immediately admitted him and the GI showed up in about 30 minutes - they did an emergency Colonoscopy and Endoscopy because the GI felt my son wasn't going to make it another day....that saved his life.
Now we are trying to navigate this whole new way of life for him. I've done extensive research on diet etc and being celiac myself nutrition and tasty food isn't an issue.
His most recent blood test came back low RBC and low Hemocrit so we are researching to find what supplements people with Crohn's take to help with anemia.
Any and all advice is welcome.
I look forward to being a part of this group!