We understand and feel so bad for your daughter. I hope the Desitin is helping. My husband is running to the bathroom all day and all night.We're using Desitin. My daughter's skin is still bright red and painful from pooping too much
I've done multiple messages and calls to GI about her flare since Friday, and I still have nothing but an over counter Desitin to treat her with. I sent an escalated message this morning - they don't give a damn. The last message from them yesterday was, "So she doesn't currently get steroids, right?" Like it was not clear in my messaging or like they cannot see that it's not on the list of the currently prescribed meds, nor that they ever prescribed it as an outpatient before.We understand and feel so bad for your daughter. I hope the Desitin is helping. My husband is running to the bathroom all day and all night.
I hear your frustration. Is your daughter on any medication?I've done multiple messages and calls to GI about her flare since Friday, and I still have nothing but an over counter Desitin to treat her with. I sent an escalated message this morning - they don't give a damn. The last message from them yesterday was, "So she doesn't currently get steroids, right?" Like it was not clear in my messaging or like they cannot see that it's not on the list of the currently prescribed meds, nor that they ever prescribed it as an outpatient before.
Erythromycin for a month now and it was not causing diarrheas. Plus, the 3rd Infliximab infusion was done last week at high dosage with a very high drug concentration of 38 and no antibodies from the lab done before the infusion. The calpro kept raising to after the 2nd infusion. they didn't want to do a repeat calpro for the recent flare,I hear your frustration. Is your daughter on any medication?
I got steroids Rx for my kiddo today. There was vomiting prior to the 1st dose. but I gave Zofran and she got the 1st dose of steroids. And I'm AMAZED with BM immediately subsiding. Only one diarrhea in 10 hours.@Magnet
Calmoseptine does not require a prescription
The pharmacy just keeps it behind the counter
Works wonders for a sore bottom
ees (erythromycin) granules doses for delayed gastric emptying typically do not cause diarrhea
formula only (een ) she is on should help but she may need a semi elemental or elemental formula
When inpatient did the diarrhea stop when they put her npo ?
I know for my kiddo he was on peptamen jr (semi elemental) as een and still had horrible diarrhea
Npo diarrhea stopped
Switched to neocate jr for a few weeks as een
Then was able to add food
if she uses a g tube or ng tube switching to elemental is easy and may slow down the diarrhea
Doc can write the script to the medical supply place
good luck