Hello I'd like to listen any experiences. My 17 year old brother is always in a very bad position. 2 fustila surgeries and now proctitis with blood. He has constantly mouth ulcers but also throat pain he spits all the time and is in pain. Sometimes he spills blood. He doesn't go to school as he can't even sit in a chair. He's on remicade but remmision is like a week each time tops.also sometimes his eye becomes red and is in pain also..im so sorry for the sheet but every doctor tell us just be patience and its everything is OK which is not..