• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Special thank you

My family would like to give a SPECIAL THANK YOU to a VERY SPECIAL LADY, MISB!!!!!!! When I joined this forum I was hoping for support and understanding from someone who knew where I was coming from and not being judged or thought of as losing my mind with the story of Madasin...

Well I got a whole lot more then I thought I would. I got uunderstanding, friendship, warm welcomes and more.
We have been trying to get another doctor to take a look at Madasin's records, test etc, to see if someone would help her out and unfortunitly we did not have any luck...

Well Thanks to a member here on this forum, Madasin has a chance to go to New York City to Mt, Siena Hospital and see a Pediatric UC/Crohns Specialist. This lady who I only met through the forum yesterday emailed this doctor with Madasins story that I had posted and he actually emailed her back saying he would see her.

We are so greatful for this no words could ever express how we feel....
I will let everyone here know when she will be going to NYC we are just waiting for contact from the doctor.
 

Lisa

Adminstrator
Location
New York, USA
Awesome news!!!!!.....Good luck with everything - if you want to stop in Albany on the way to/from let me know! I'm at work most days M-F.....right at the Empire State Plaza.....
 
Bev you have made a real difference to this forum, and now you've made a difference to a little girl's life - and to her family too. you are a true angel, and we are so lucky to have you here. well done you!

Rosemary - i am more delighted to hear this encouraging news than words can say - i hope this is the turning point for Madasin :)
 

Dexky

To save time...Ask Dusty!
Location
Kentucky
Rosemary, I know you probably have been too engrossed with little Maddy to have scooted round much on the forum but I want to let you know just how special a lady Beverly really is. She is in the process of undergoing consults for surgery herself and has been in constant agony for at least the last two weeks that I know of. In spite of this, she has made this effort. She is a blessing to us all. Thank you Bev!!
 
Thanks Dexky, your are right I have not had a lot of time to scoot around and I am still learning the site, I apoligize for that, I am learning though, there are so many threads and postings to read, I could spend hours on here if i had hours to do so. lol
thank you for the information. I am so very grateful for our special Lady for all she has done for miss maddie. I will keep bev in my thoughts daily.
 
:blush::blush::blush: You are all too much. I'm not use to doing nothing and things I need to do I have had a hard time doing lately. So being able to sit here and use my laptop to help someone else actually makes me feel better. I just hope it helps. So far the Dr. is asking questions, but I think we'll all feel better when an actual appointment is made. My 19 yr old daughter is dealing with a minor illness and I cannot even begin to imagine what Rosemary and her daughter are going through.

Anyway, I hope this helps and that Madasin can get some relief soon. She is such an adorable little girl and does not deserve this. It is a priviledge to be a part of this forum and to be able to help others, build friendships, and to know others are there for me. You are all the very best group of people I have had the pleasure of spending time with. :mademyday:
 
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