Hi, My husband has been diagnosed with Crohns disease in Feb 2012. His complications got severe and doctors have recommended CIMZIA. Little tensed on how to expect for the future. This forum is great idea for support group.
Thank you! Regards Smitha
Hi, My wife has Crohn's and has been taking Humira for about 5 years.Looking forward to talking with others ,and learning more about how to help her.:hug: Thank you for coming into my GROUP !!! I am happy to see someone else come along besides myself so thanks again !!!
You have the honor of being my first thread subscription!
I'm a newbie here, and I've been married to my husband for a little over 2 years. He's been diagnosed with Crohn's since 2008 (at 18 or 19 years old), married since 2011 (20 years old). I knew what I was getting into, and fell in love with him anyway. :smile: We also have a 1 1/2 year old son who is the pride and joy of both of our lives.
My husband, William, has just undergone his first surgery, an ileostomy at 22 years old, and is experiencing some complications. I'm so glad this group is here! I've about decided that it's almost (not quite, I'm sure, but almost) as hard to be married to the disease as to have it.
Hi, My wife has Crohn's and has been taking Humira for about 5 years. Looking forward to talking with others, and learning more about how to help her. Russell
Thanks Mrswill,Hi Neil i know its hard and if your a fixer its even harder to ...
Ahhh I'm not alone. I like your advise on taking care of yourself too. Cooking for one is not as much fun, and neither is eating everything in front of him, or eating alone. His appetite goes down and I loose weight :yrolleyes: Any tips??Hi Neil i know its hard and if your a fixer its even harder to stand back and watch the person you love suffer. Sadly theres nothing you can do except give emotional support (with a bit of housework and cooking on the side). Its very important though and not to be under estimated!! When physical health takes a slide a persons mental heath can suffer to. My husband struggles with depression and with the sudden onset of his symptoms he started to feel like his whole world was crashing down. Its important to try and make sure you keep a sense of normality. (as much as you can i know its not easy). Make sure your partner knows you still think there wonderful (and not useless) as Will kept trying to say. You also need to make sure you take time to keep yourself mentally well. I found it took a huge tole on me. I wasn't sleeping properly because i was being kept awake or being woken up and i wasn't eating properly because Will didn't want to eat or his diet was restricted. I've found people on here very supportive and helpful and I hope you do too. Good luck with the new meds!
Wow, have I been there cottonbud (as I suspect lots of people here). That first night when you leave them in the hospital is the worst. Try to get some sleep, don't neglect yourself, reach out for support, and know hubby is in good hands.Hi all!!!
this forum is going to be a sanity saver for me!!!
joking aside ive just got home from hubby being admitted to hospital with a bad flare up. hospital were fab so now we have to wait until morning to see whats going on. hated leaving him there but I know its the best place and he said himself I need my sleep which is true as im gonna be looking after him lots!!!
feeling a little lost tonight :-(
One thing we always do for our travel plans is purchase trip insurance. Yes, it will cost you more, but it isn't outrageous (IIRC, it is typically less than $100 per person). That way, if worse comes to worse and you have to cancel at the last minute, at least you can get your money back. If you book through an agent or a travel website, you can purchase it through them, or do it independently on-line. Depending on the policy, you can also get it so that it covers medical flights back, if that becomes necessary.Fear of a major flare up makes some plans for travel seem impossible. Our daughter is going to study aboard (across the pond) this summer and we had planned to travel with her a bit before classes began. Now hubby is fearful of even getting on that plane. And I have a truck load of emotions as well (travel alone- guilt, push him to go- fear, stay home- frustration, disappointment, etc) We were fine with travel before because flares had been minor in comparison to this last one. Hubby's biggest fear is a major flare when he's not at home...I understand that completely. How do you handle this? Go, carefully? or find other adventures closer to home?
I sure wish I had a good answer to that! IBDer's diets are almost opposite of what everyone else should have. As for meat dishes,i don't know, except maybe smaller portions of lean meat included in something like pasta dish, maybe something like chicken fetucinni alfredo, or a tuna noodle casserole. I hope this helps.Good Afternoon All!
Anyone else feel like they are making meals for their families af if your kitchen is a resteraunt? My hubby has been flaring and strongly adhering to the Low Residue Diet... I'm finding myself at a loss for options... According to the diet lean meats like chicken and fish are best, however, we've found chicken doesn't agree with him either.
So besides fish, I've made 3 meat loafs with ground beef and ground pork and that seems to be the ONLY meats that don't go right through him!
Anyone have any good menu ideas?
Signed, over meat loaf! Lol!
Thanks! Last weekend, I made him a "special" grilled chicken pizza with a light white sauce and homemade crust and that totally did him in... Since this is his first major flare and up to this point he's been able to eat just about anything besides spicy foods this is a huge adjustment!! I'm starting to notice that even eggs are worsening the flare. As soon as we get his bathroom visits down to 5 times per day. We try something a bit different like the white pizza or plain egg omlet and he's in the bathroom ALL night.I sure wish I had a good answer to that! IBDer's diets are almost opposite of what everyone else should have. As for meat dishes,i don't know, except maybe smaller portions of lean meat included in something like pasta dish, maybe something like chicken fetucinni alfredo, or a tuna noodle casserole. I hope this helps.
:smile: Welcome to the Group ... I am sure that someone will be there to help out as I found lots of support in the beginning with my hubby and I found myself sleeping a lot in the guest room ... just so that he could have the room to sleep and to also be close to the bathroom ... So, I will try and come up with some help ideas for you ... so once again WELCOME !!!Hi everyone. My husband has Crohn's. Severe mood swings pain and now insomnia and severe back pain. Any suggestions? Anyone else's have these symptoms? What do you recommend for back pain? Can barely stand or lay down
Thank you. I'm just wondering if a chiropractor would be of use.
:smile: Welcome to the Group ... I am sure that someone will be there to help out as I found lots of support in the beginning with my hubby and I found myself sleeping a lot in the guest room ... just so that he could have the room to sleep and to also be close to the bathroom ... So, I will try and come up with some help ideas for you ... so once again WELCOME !!!
Yes, walking is a great exercise - no special equipment needed, do at your own pace, as it fits your schedule, good stress relief. My wife is a big fan of yoga and does it several times a week.We were thinking that some yoga might help, and walks will be added as well when he feels up to it. That definitely is a good idea to talk about things out of the house.
We live in a big metro area (Cleveland) with some big teaching hospitals, and there are actually therapists here that specialize in helping people with chronic illness or similar issues. If there are people like that in your area, they may be of help. Maybe his doctor can help him find someone.I go to a therapist every other week, I have for years, and I told him that it would be extremely beneficial to him as well, so he is currently looking for someone to go see as well.
Yes and yes. Relationships are hard work, but aren't most things that are really worthwhile. And Crohn's does make it that much harder.I think things are on the up and up. Relationships are hard work, especially with Crohn's in the mix, right? So, lets keep our heads up, spouses! They are so worth it.