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Starting Stelara

Hi everyone

So I have been in remission for eight years but started having issues last year. My previous CT reported it had burned out.

last Aug I have changed my GI and he advised I have active inflammation. So I’ve had the Budesiondie steroids and just got the funding in the Uk for this.

Anyone had any side effects while having the loading dose or after an injection if so what are they and how long did it take to show, and how long did it last.

I know this might sound daft but after a year on methotrexate my liver had been hit badly.

I know I am lucky getting the funding for this drug I don’t want to sound ungrateful but like to hear others issues if any.

my little penguin

Staff member
My kiddo is 17
He started Stelara at 14
He was dx At age 7
so 3.5 years of Stelara
No issues with infusion or injections
It does take a very long time to start working
Average is 8 months
My kiddo needed it every 4 weeks at 90 mg to be effective but he also has juvenile arthritis in addition to crohns
Good luck
San Diego
Similar here. I've been on Stelara for over three years now, and I haven't had any side effects or issues from the loading dose or the maintenance doses. It is commonly reported that it take a long time to kick in, but foir me it worked reasonably quickly. My symptoms (primarily pain) were much reduced after about a month, and I've been in remission ever since.

Also, I am taking the Stelara as monotherapy, meaning no MTX or azathioprine to go along with it. It is reportedly much less immunogenic (less likley to lose effectiveness due to generation of antibodies) than some of the older drugs such as Humira and Remicade.