Stay at home dad for the past 5 yrs. Two boys ages 5 and 3. Wife is the COO of an organization and a very supportive mother and partner. I mention her title because it requires long hours and many days I am with the children from morning until bedtime. So this job as a SAHD is way more rewarding and challenging than I can convey. On good days when I was in remission it took all my energy. I was diagnosed at 14, hospitalized in my teens and twenty’s , no surgery’s, then went into remission with an occasional hiccup for over a decade. Lialda, Ascol, and some probiotics. Then about 2 years ago I flared up and I have been trying to get back in control. Started Humira 3 months ago but no real help yet. Still hopeful but the pain and frequency of restroom use is tiring enough. Add on the fatigue and two young kids and I’m burnt. Plus I gained a ton of weight while on prednisone. Lots of guilt lately for not being able to take the kids out as often as I’d like, have to route out the bathrooms when we go places, and no vacations for Dad this summer. Heck, last summer as well. It’s a lonely disease this Crohn’s and I hurt and I bleed and I cramp up and poop in my pants. But I keep on keeping on even though I’d love to just crawl in bed somewhere far away. Anyone else raising kids while flaring up?
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