Just a little update on my son's case. He's 13, and he had surgery last year to remove a stricture at the terminal ileum. Prior to that he was on Remicade and then Entyvio as well as long-term EEN. Nothing we tried worked enough to allow him to go off the EEN, and none of this was able to get rid of the stricture, so he ended up needing the surgery.
After the surgery things were going ok for a while on EEN, and then things went south when we tried food again. So it was back to EEN--this time with a semi-elemental formula. That helped, but it wasn't enough, so he started Stelara.
We've been continuing the semi-elemental EEN even with the Stelara, and the plan is to start introducing foods again once we're sure the inflammation is really gone for long enough. He's just had his second dose of Stelara at this point.
Symptoms were already low, but so far we've noticed some slight improvement due to the Stelara. However, the main change is a huge drop in fecal calprotectin. For the first time ever, his fecal calprotectin reading is now below 50 (normal). Stelara has had no obvious side effects yet.
After the surgery things were going ok for a while on EEN, and then things went south when we tried food again. So it was back to EEN--this time with a semi-elemental formula. That helped, but it wasn't enough, so he started Stelara.
We've been continuing the semi-elemental EEN even with the Stelara, and the plan is to start introducing foods again once we're sure the inflammation is really gone for long enough. He's just had his second dose of Stelara at this point.
Symptoms were already low, but so far we've noticed some slight improvement due to the Stelara. However, the main change is a huge drop in fecal calprotectin. For the first time ever, his fecal calprotectin reading is now below 50 (normal). Stelara has had no obvious side effects yet.
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