A support group for those who are being treated with Stelara/Ustekinumab.
How many times have you had it injected. I was told I would get it at 0 weeks, then 4 weeks and after that it would be every twelve weeks.I started in Feb and am finally seeing some results from something. Went thru Pred/Imuran/Remicade and nothing unless I was on really high Pred doses. Not at 100% yet but its made a major difference. Having some issues with sore joints and pain though and searching around a bit to see if there is a connection. Also on Imuran now so could be that.
I live in Virginia near Washington, DC. Does anyone know of any home health service that could come to give me the injection? Thanks in advance.
My daughter has been on Stelara for over a year now and is doing great! She has been on all other biologics in the past that have failed. She just recently had her ileostomy reversed because her colon was finally not so inflamed! She has had no complications while being on Stelara and I give her the injections myself every eight weeks. My insurance is also covering it, so we pay just the $100/copay.
I hope it goes well, Chocolatechick! Claire is also on Methotrexate. So we call it double-trouble. But so far, we have not noticed any unusual side effects with the addition of Stelara. Keep us posted!I'm doing my first dose of stelara tomorrow. I'm already on one immune suppressing injectable drug for ms kinda freaked out to adding another one. Here's to more needles!!! Weening of off pred at 25 mg right now will keep you posted!
Thank you! And yes totally makes sense. I've heard this drug mentioned in the MS world too so was curious how it worked with other drugs! I really hope stelara works for Claire! So hard to see your child suffering I'm sure. I had my first stelara injection yesterday. Fairly Uneventful slight headache and sore throat but nothing major.Methotrexate is an immune suppressant as well. Typically patients start with 6MP or Azathioprine when they have IBD. Claire couldn't tolerate 6MP. Also, she has JRA and Methotrexate is used more in RA to help prevent joint damage. So between the intolerance to 6MP and the arthritis, we've gone with methotrexate. Unfortunately, it hasn't been enough on it's own to suppress the Crohn's disease.
You may read about a lot of folks using either 6MP or Azathioprine in addition to biologics like Remicade, Humira, etc. They suppress the immune system in general and aren't as targeted as the biologics. Some people take them to prevent building antibodies to the biologic (like Remicade). When those aren't options, Methotrexate often comes into play.
We are hoping that if the Stelara helps Claire achieve remission that we will be able to drop the Methotrexate and exclusively use the Stelara. Thats my plan (and the GI's too ) if Stelara works for her.
Hope that makes sense. If not, there are folks that can speak much more scientifically and give you a more detailed explanation! Let me know and I'll tag them if you need more.
Yes lgpcarter, off the prednisone. Seem to being doing pretty good on Stelara, fairly reg BMs not much pain just still have a problem with urgency better than before at least when I only had about 1 min to get to a bathroom I have about 10 min max now better but still very inconvenient I'm also having a lot of muscle aches and congested sinuses not sure if this is a side effect or not. What is CRP?
I just got off of it. It was given to me every eight weeks. I didn't notice any side effects. I wish you the best.I've just been diagnosed with Remicade induced psoriasis so the dermatologist is applying for Stelera for me. I don't know much about it other than it costs a lot. Can anyone tell me how it's going for them - what kind of side effects can I expect? How often do you take it? I know it's an injection instead of an IV so that'll save time.
Hi rrhood1,I've just been diagnosed with Remicade induced psoriasis so the dermatologist is applying for Stelera for me. I don't know much about it other than it costs a lot. Can anyone tell me how it's going for them - what kind of side effects can I expect? How often do you take it? I know it's an injection instead of an IV so that'll save time.