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Stelara
- Thread starter Kat40973
- Start date
My kiddo has been on Stelara since 2017
He has crohns in multiple places including his terminal ileum
It’s has worked well
He takes it every 4 weeks plus methotrexate due crohns and juvenile arthritis
It took a long time to start working (8 months in his case )
He has crohns in multiple places including his terminal ileum
It’s has worked well
He takes it every 4 weeks plus methotrexate due crohns and juvenile arthritis
It took a long time to start working (8 months in his case )
Hi thank you for the reply ! My doctor put me on it in July. My Crohns is in my small bowel ileum only. One doctor told me it can work better in the large intestine and may want to try humira but im not sure if that’s true. My calpro dropped from 300 to 53 which is a good sign. I still have pain though but don’t want to give up on stelara.
Stelara works better in the small intestine
Entyvio is better for the large intestine
Humira works the entire body
my kiddo has been on remicade (8 months -two allergic reactions )
Humira -5 years then stopped working
Now Stelara for over 5 years
Entyvio is better for the large intestine
Humira works the entire body
my kiddo has been on remicade (8 months -two allergic reactions )
Humira -5 years then stopped working
Now Stelara for over 5 years
I am on Stelara for Crohn's confined the ileal region of the small bowel, and it is working pretty well. Going on 6 years now with no side effects and a near Crohn's -free life.
My daughter went on a strict CDED diet for 12 weeks when she started Stelara. It really kick started her remission. We liberalized the diet at 12 weeks and unfortunately the Stelara wasn't ready to take over. Her fecal calpro shot up again. So we returned to the principals of the diet and at about a year after starting Stelara she is able to eat most things and maintain a good remission (scopes clean and fcal under 100.)
Did you do the maintenance phase after week 12 or add more food items to the main. plan?
@Kat40973
Fecal cal of 73 is normal (less than 150 )
Have you had imaging /scopes ?
Bloodwork?
How long have you been on Stelara?
Do your symptoms improve after the shot ?
Stelara can take many months to be effective
My kiddo needs Stelara every 4 weeks to stop symptoms and keep fecal cal below 15
At 6 weeks he feels horrid and fecal cal starts to climb —168
Sed rate also increases
he also takes methotrexate to boost Stelara
it took about 8 months to figure out he just needed a more frequent dose
scopes confirmed minor inflammation still present at every 8 weeks
Good luck
Fecal cal of 73 is normal (less than 150 )
Have you had imaging /scopes ?
Bloodwork?
How long have you been on Stelara?
Do your symptoms improve after the shot ?
Stelara can take many months to be effective
My kiddo needs Stelara every 4 weeks to stop symptoms and keep fecal cal below 15
At 6 weeks he feels horrid and fecal cal starts to climb —168
Sed rate also increases
he also takes methotrexate to boost Stelara
it took about 8 months to figure out he just needed a more frequent dose
scopes confirmed minor inflammation still present at every 8 weeks
Good luck
We did do maintenance but it was harder, ironically, to keep the cheats to just the 2 days. For us it just worked to use the first 2 stages. More of a self control/teens issue.when we went back to it, we had to do stage 2.