Hi all,
I have had symptoms for the past 10 years, which solely involved abdominal cramps central above my belly button. In 2011 I had a bowel resection for a perforation, which was wrongly diagnosed as a burst appendix. I then had no treatment after this and remained well until May last year I started getting cramps again. I got referred back to my GI and had a colonoscopy that showed ulcers and inflammation at my terminal ileum. My GI also commented that my small bowel "looked withered" on my colonoscopy and I was diagnosed with Crohn's disease. I had a fecal calproctin test, which was 65. I also had a CT scan, where I swallowed the contrast which was "entirely normal, noting a healthy bowel join where I had my resection".
So I was on entocort 9mg for 7 weeks and felt no benefit. I went back to my GI and stopped the entocort and the next day started prednisolone 40mg. I have been on this for 5 days and still NO BENEFIT. What is going on? Last night I got bowel spasms again for about an hour for the first time since before starting any treatment. From reading this forum, this is an indicator of bowel obstruction? I have never ever been to hospital over these cramps.
I am so confused am I resistant to the steroids? I have used hydrocortisone cream before for skin issues and it worked very well so surely prednisolone should work too? I am supposed to taper down on Wednesday! I am confused obviously at the colonoscopy I had visible active inflammation, is it possible the steroids just aren't getting rid of this? Or have they got rid of it, and I continue to have symptoms (bowel spasms and pain on the LRQ) as a result of scar tissue/adhesions from my surgery in 2011? Why was my CT scan normal?
Help!
I have had symptoms for the past 10 years, which solely involved abdominal cramps central above my belly button. In 2011 I had a bowel resection for a perforation, which was wrongly diagnosed as a burst appendix. I then had no treatment after this and remained well until May last year I started getting cramps again. I got referred back to my GI and had a colonoscopy that showed ulcers and inflammation at my terminal ileum. My GI also commented that my small bowel "looked withered" on my colonoscopy and I was diagnosed with Crohn's disease. I had a fecal calproctin test, which was 65. I also had a CT scan, where I swallowed the contrast which was "entirely normal, noting a healthy bowel join where I had my resection".
So I was on entocort 9mg for 7 weeks and felt no benefit. I went back to my GI and stopped the entocort and the next day started prednisolone 40mg. I have been on this for 5 days and still NO BENEFIT. What is going on? Last night I got bowel spasms again for about an hour for the first time since before starting any treatment. From reading this forum, this is an indicator of bowel obstruction? I have never ever been to hospital over these cramps.
I am so confused am I resistant to the steroids? I have used hydrocortisone cream before for skin issues and it worked very well so surely prednisolone should work too? I am supposed to taper down on Wednesday! I am confused obviously at the colonoscopy I had visible active inflammation, is it possible the steroids just aren't getting rid of this? Or have they got rid of it, and I continue to have symptoms (bowel spasms and pain on the LRQ) as a result of scar tissue/adhesions from my surgery in 2011? Why was my CT scan normal?
Help!
