I know it's not crohn's related, but it kinda is. So I did post about this a few months ago but i'll give a short recap... Since July/August I've been waking up with nausea and sometimes vomiting bile as soon as I wake up. I thought it was crohn's related, but an upper endoscopy in September revealed there's nothing wrong with my stomach (except a hiatal hernia), but no h. pylori and I've also recently had a stool test for bacterial infections and it all came back clear. About a week ago I managed to see another gastro doc by calling the hospital a few times a week begging for help. I said I was smoking cannabis a lot because I seen it help me, I genuinely believe if it wasn't for cannabis I would of lost a lot of weight, but as soon as I said that the doctor said with asking no other questions said that it was CHS. So per her advice I've stopped smoking cannabis and have already lost 10 pounds in a week. I'm in two minds about what to do but I really am going to stick to a period of sobriety and eat as well as I can even though the vomiting hasn't shown signs of alleviating
And how this related to crohn's. So there's not too much about CHS online, but two things I've learned is that it's very rare and is caused by mutations in the stomach lining... So I think there's a correlation between crohn's and CHS because people with crohn's already have mutations in their digestive tract. So people with IBD should be cautious about cannabis. CHS is associated with heavy chronic use of cannabis and I understand many of you may rely on medical cannabis for relief of their IBD, but just watch out for morning nausea and vomiting and also symptoms of gastroparesis (mainly you vomit food 4 hours after eating).
General update: I have no turned 21 and have been seeking diagnosis and treatment for 10 months. I have been offered steroids (only under the condition that "we want to see if your symptoms react to steroids like crohn's would" so i rejected them as I really think it's vital that I start a longer term med like an immunosuppressant because it can take months to work instead of short term meds like steroids which have horrible side effects. I've also had my IBD nurse appointments cancelled because I don't have a diagnosis as of yet. I'm also going to have an MRI of my small intestines and another upper endoscopy (that one I'm not looking forward too). So thanks for reading hope the CHS info had a positive effect.
And how this related to crohn's. So there's not too much about CHS online, but two things I've learned is that it's very rare and is caused by mutations in the stomach lining... So I think there's a correlation between crohn's and CHS because people with crohn's already have mutations in their digestive tract. So people with IBD should be cautious about cannabis. CHS is associated with heavy chronic use of cannabis and I understand many of you may rely on medical cannabis for relief of their IBD, but just watch out for morning nausea and vomiting and also symptoms of gastroparesis (mainly you vomit food 4 hours after eating).
General update: I have no turned 21 and have been seeking diagnosis and treatment for 10 months. I have been offered steroids (only under the condition that "we want to see if your symptoms react to steroids like crohn's would" so i rejected them as I really think it's vital that I start a longer term med like an immunosuppressant because it can take months to work instead of short term meds like steroids which have horrible side effects. I've also had my IBD nurse appointments cancelled because I don't have a diagnosis as of yet. I'm also going to have an MRI of my small intestines and another upper endoscopy (that one I'm not looking forward too). So thanks for reading hope the CHS info had a positive effect.
