Hi everyone!
I posted about a month ago about my 5 year olds tummy troubles. I wanted to give a little update and see if you guys may have any other advice for me. I don’t know how much more I can take of this.. her symptoms seem to wax and wane. The middle of June she got really bad going to the bathroom 4-5 times a day crying in pain and just wasn’t herself. I called our gastro and she ordered stool cultures and a calprotectin test. Her test came back positive Ecoli and her calprotectin was 203. After about a week or so her symptoms lessened.. at the end of June I spoke with my GI and we had scheduled a colonoscopy for tomorrow ..after speaking with her and scheduling the apt I decided to take her my daughter off of gluten (she did have a celiac panel done which came back fine) but I decided to give it a try anyway.. her symptoms got 100 times better her stool became formed like normal looking I couldn’t believe it and she wasn’t complaining about tummy aches as much (she would still complain here and there) But overall everything seemed to calm down. I noticed that if she ate corn she would go loose for a couple of days with a tummy ache but then she would go back to normal.
I spoke with her GI again to tell her how her symptoms improved and she ordered another calprotectin test it came back less then 16. The doc felt that the Ecoli raised the last test to 203.. So today we decided to cancel the colonoscopy (which would have been tomorrow) and watch and see what happens... well of course I get home from work and there she is complaining of a tummy ache and had 2 loose stools. The coincidence is UNBELIEVABLE. This hasn’t happened in weeks.. I am just at loss I feel like I am going crazy and I just don’t know what to do. This has taken over my life it’s made me so anxious.
Would it be normal for Crohns symptoms to come and go like this?
When I did the last calprotectin test I was at work so after my daughter went my mom put it in the container and placed it in to fridge until I got home (about an hour later). I quickly transferred the sample in the container on ice to the lab about a total of an hour and a half.. Does anyone know it this would have possibly effected the result?
Thank you for reading my rant it feels so good to just write it down and know that people who have been there that understand the frustration and fear will read it!
I posted about a month ago about my 5 year olds tummy troubles. I wanted to give a little update and see if you guys may have any other advice for me. I don’t know how much more I can take of this.. her symptoms seem to wax and wane. The middle of June she got really bad going to the bathroom 4-5 times a day crying in pain and just wasn’t herself. I called our gastro and she ordered stool cultures and a calprotectin test. Her test came back positive Ecoli and her calprotectin was 203. After about a week or so her symptoms lessened.. at the end of June I spoke with my GI and we had scheduled a colonoscopy for tomorrow ..after speaking with her and scheduling the apt I decided to take her my daughter off of gluten (she did have a celiac panel done which came back fine) but I decided to give it a try anyway.. her symptoms got 100 times better her stool became formed like normal looking I couldn’t believe it and she wasn’t complaining about tummy aches as much (she would still complain here and there) But overall everything seemed to calm down. I noticed that if she ate corn she would go loose for a couple of days with a tummy ache but then she would go back to normal.
I spoke with her GI again to tell her how her symptoms improved and she ordered another calprotectin test it came back less then 16. The doc felt that the Ecoli raised the last test to 203.. So today we decided to cancel the colonoscopy (which would have been tomorrow) and watch and see what happens... well of course I get home from work and there she is complaining of a tummy ache and had 2 loose stools. The coincidence is UNBELIEVABLE. This hasn’t happened in weeks.. I am just at loss I feel like I am going crazy and I just don’t know what to do. This has taken over my life it’s made me so anxious.
Would it be normal for Crohns symptoms to come and go like this?
When I did the last calprotectin test I was at work so after my daughter went my mom put it in the container and placed it in to fridge until I got home (about an hour later). I quickly transferred the sample in the container on ice to the lab about a total of an hour and a half.. Does anyone know it this would have possibly effected the result?
Thank you for reading my rant it feels so good to just write it down and know that people who have been there that understand the frustration and fear will read it!