There you go again I swear you are talking to my wife again.That is actually the best case scenario for surgery, Dukeis. The better you feel going in, the faster you heal and the sooner you get to get on with the joys of stoma ownership.
It must be frustrating, though... I can see that!
I'm going to second Toothy on that. The worse you are when you have surgery the longer the recovery time. Our Misty Eyed was feeling very good before surgery, and she recovered quicker. Me, took months to feel human again. It's a major op. So, although it IS harder to get your head around it to have surgery when you feel good, it is better for your body to have it at this time.Has anyone else here felt really good and had to have surgery? What I'm getting at is of all the times I have felt like total crap I never have had to have surgery. Now I'm feeling pretty damn good and I have to have this surgery. I know it has to be done because of the dysplasia, but it seems to make it harder by feeling so well.
That is a good idea. Surgery is scheduled 2 weeks from today March 20th.It could be worth starting just one of them post surgery to see which one causes you to feel lousy. When are you having the surgery? Sorry my poor old brain has forgotten.
Not to comment too much on your situation since I know little of transplant surgery, but to share my experience about nutrition and weight loss prior of surgery. I once had a surgery postponed due to weight los and low nutrition. The surgeon thought I was too weak to do a good recovery. He strongly reconmended to postpone it by some weeks/month and durring that time I was on a special nutrition diet drinking special drinks 3 times a day to improve bodys nutrition. He would have operated as planned on my demand but who am I to go against his advise. My nutrition levels improved and a sucssesful operation was done in 2003.For everyone who says they felt bad going into surgery and took longer to recover, I'd like to know what you mean by "bad." Are you talking about the Crohn's itself (a bad flare, etc.) or your overall condition (not physically fit)? I'm asking because I just learned I need to have my entire colon removed, but I also was told I have lost too much weight to undergo transplant surgery (I'm on the liver transplant list). I'm wondering how much of a problem my weight loss might be.
(I only just learned of the colon removal last night, and don't know when my doctor will call back. I will ask him all these questions and tons more, but I want to learn as much as I can in the meantime.)
I'm still waiting to hear back. No one called me today, so tomorrow I'm going to be hounding them.Hope yours go well too have they said when they are going to do it?
It feels a bit like the inside of your cheek.I got one of those kits too. It is a dried sponge. :ack: However, a real stoma is squishy like a noodle. You're gonna have fun touching it!
What I know right now is that the entire colon needs to be removed, but the question is whether they can time it to coincide with my liver transplant. I've only spoken with the doctor who diagnosed me; I will meet the surgeon and her team once I get an appointment scheduled.Did you find out more about what the surgeon will be doing? Are you having part of your colon removed?
Well, my liver problem is because of an autoimmune disease (primary sclerosing cholangitis), so it's possible there's some relation. I was diagnosed with both in 1999 but was symptom-free for years. Crohn's struck first, in 2008, followed by the PSC in 2011. I was put on the liver transplant list last April.Is your liver condition crohn's related?
Gosh that is really hard to have both. I just read that it is common for people to have both diseases and that liver transplants are very successful in treating the disease. I hope you can have your transplant soon so that you can get on with the rest of your life. It must be very frustrating waiting. Hugs.Well, my liver problem is because of an autoimmune disease (primary sclerosing cholangitis), so it's possible there's some relation. I was diagnosed with both in 1999 but was symptom-free for years. Crohn's struck first, in 2008, followed by the PSC in 2011. I was put on the liver transplant list last April.
I had mine on Jan 11th and my wound got infected. Just got my wound vac off last week. It's been a long road but its getting better everyday. Hopefully it will get better for you.Hi, My name is Cathy and I had my ileostomy on January 18th. I hate to admit this but I think I would rather have the pain of the fistulas and abscesses back. The doctor keeps telling me things will get better, but it is hard to believe him as I swallow my Imodium and opium.
So, here I am, hoping to learn from all of you who have been where I am now.
:thumright:See Susan, Now you know I can at least follow directions