Exactly what I was thinking.
This made me think of how I'm going to explain this to my nephew - he's not old enough to understand yet, but he also has bowel problems, which I think will be hard for him in a year or two when he starts school and he'll be the only kid still in nappies. Maybe if I teach him that my stoma is something to laugh at and not to be embarrassed about he'll find it easier to accept his own problems. It does worry me because I developed bowel problems in my teens and found the embarrassment excruciating for a long time. I'm not sure whether very young kids would find it easier to laugh about than teenagers.Kids and pets! My stepkids thought my stoma was hilarious when I first got it. They'd always ask me to make it fart...lol
Young kids definitely find it easier. My stepdaughter was 4 when I got my stoma. Poop jokes never get old. Just sayin'. Just be open and honest about it, and give enough information that they can understand. I just told Emily that I poop into a bag that's attached to my stomach. I showed her the bag and she went "cool!". And that was the end of that conversation...lol If they see that you find it normal and no problem, they won't have a problem with it. Just my 2 cents.This made me think of how I'm going to explain this to my nephew - he's not old enough to understand yet, but he also has bowel problems, which I think will be hard for him in a year or two when he starts school and he'll be the only kid still in nappies. Maybe if I teach him that my stoma is something to laugh at and not to be embarrassed about he'll find it easier to accept his own problems. It does worry me because I developed bowel problems in my teens and found the embarrassment excruciating for a long time. I'm not sure whether very young kids would find it easier to laugh about than teenagers.
I love dogs - I couldn't live without mine! I've had them all my life and they are my absolute favourite animal and you'll bond with a dog in a way you could never hope to do with any other animal - and I've had plenty, from fish to horses, when I was a kid and had good health, collecting and breeding every animal I could think of was kind of my obsession. I don't have the health to want all those animals anymore, I wouldn't want all that responsibility now, but my dog is my baby, and I'm closer with her than with any of my previous dogs.omg some of these :') my cats dont give a damn about my bag. I dont exactly show it off to themthough, even if its hanging out my pj's lol. I really want to get a dog (for at my dads, the cats are at my mums. So many people say they help when your ill and Ive wanted one forever. Years ago we were actually going to get a dog, we even got a car with a boot built for dogs but my brother is scared of any dog that jumps or barks :/
What's his reasoning behind this? A stoma does not in itself affect your ability to care for a dog. You can be very well with a stoma, and very ill without one. A stoma doesn't alter your ability to exercise and care for a dog, unless you are sick with stoma-related complications, but you could just as easily get sick from Crohn's complications after your stoma is reversed. Or does your dad mean he wants to get the reversal surgery out the way before getting a dog, so that you won't already have a dog when you go for surgery? The holiday thing makes no sense to me either.My dad doesn't want me to get a dog until my stoma is reversed, but as I was considering keeping my stoma for longer than planned that's like the worse thing he could say. Ive got to choose between keeping my stoma, and not having surgery but no dog or holidays (yep not allowed on holiday with a stoma :/ stupid dad) or loosing my stoma, having surgery to knock me backwards, have to miss extra school, but ill get holidays and maybe a dog. How do I choose between health and happiness
I'd just like to point out, that not all of us hate having a stoma. I love mine and wouldn't go back for anything.As much as we all hate having a stoma we have to think of the benefits it's actually given us.
Agreed!!!I'd just like to point out, that not all of us hate having a stoma. I love mine and wouldn't go back for anything.
Me, too! Well, not sure about "love it", but certainly appreciate it and wouldn't go back to the 25 years pre-stoma for anything.I'd just like to point out, that not all of us hate having a stoma. I love mine and wouldn't go back for anything.
I think with this disease there are always going to be uncertainties - with or without a stoma, there may be periods where you are in hospital or unwell and unable to care for a dog. But I don't think that means you should not get a dog, just that you need to plan carefully who will care for and exercise the dog should you not be able to.My dad said we are getting a dog, June at the earliest, but he hasn't spoken about the stoma or holidays but I think he still wants the stoma gone. I think it is to do with if I had my reversal surgery the dog might be lonely while I'm in hospital. But I wanted to keep my stoma, maybe years and years. But I guess if I change my mind the dog would be lonely... maybe I should go back to being a butt pooper so I can have a dog. Its such a hard decision.
Hey Dulli,Sadly, its permenant :/ I hope things get better in the future.
I think once you're able to return back to the things you enjoy doing, you'll forget about at the stoma most of the time.Im not sure. Maybe its the thought of having an a-hole on my stomach. I'll probably get used to it in the future, but right now its just... Well... Not a great feeling.
Also, things are going too slow. Today my stoma is 3 weeks old, but I cant wait to get back to my "old" life, where I can get back to my bodybuilding etc. Im probably too eager.
Will we always be at risk with hernia or is it just when things are new?
^ with a prescription they'll cover it.Nu hope makes custom belts that can reduce the risk of hernia. They are fantastic but you need very specific measurements and it takes about 3-4 weeks to get it insurance usually covers it
^ with a prescription they'll cover it.
Awesome.I got mine fairly quick. I use Edgepark for my ostomy supplies and they sell them. First, I used the measurement guide on the manufacturer website then searched by account number and it came right up. I got it within a week and that's after insurance and doctor verification.
This might be specific for edgepark so take it for what it's worth.
Please forgive any typos, posting from Tapatalk for iOS.
Check out my blog on my journey with crohns! http://blastoffcrohns.blogspot.com/?m=1
When you say "blowout" do you mean the wafer separates from your skin or the pouch comes off? Is it because of gas or is the pouch genuinely full?Finally got my stealth belt, and it's amazing. The only time I don't wear it is when I'm showering. I've had 2 blowouts but those were after drinking a few beers and eating really late at night. Still a learning process but it's getting better.
When you say "blowout" do you mean the wafer separates from your skin or the pouch comes off? Is it because of gas or is the pouch genuinely full?
Yay for the Stealth Belt! :ycool:
Damn, that's a pain! I've had seepage under the wafer on nights were I get heavy ballooning, but the only time I had a complete breach was when I had modified my wafer in a way that didn't give it a lot of surface area to hold onto + a lot of bending the day before. Learned my lesson quick! And I always use the larger size Coloplast bags - not HIGH OUTPUT bags, which have a spout, but regular pouches in the larger size.As in the wafer separates from the body. As you can imagine, it creates quite the mess. It also happened while using a smaller bag so I only sleep with a regular sized bag from now on.
Please forgive any typos, posting from Tapatalk for iOS.
Check out my blog on my journey with crohns! http://blastoffcrohns.blogspot.com/?m=1
Damn, that's a pain! I've had seepage under the wafer on nights were I get heavy ballooning, but the only time I had a complete breach was when I had modified my wafer in a way that didn't give it a lot of surface area to hold onto + a lot of bending the day before. Learned my lesson quick! And I always use the larger size Coloplast bags - not HIGH OUTPUT bags, which have a spout, but regular pouches in the larger size.
Things will get better once you learn your ostomy's pattern.
Marshmallows help to thicken up output, am I the only one who stockpiles (hordes) Peeps at Easter?
It's a scientific fact that Peeps are one of the top 3 forms of marshmallows (the other two being cereal marshmallows and those weird red things that are allegedly strawberry flavoured and not available in the States).
On Monday I cleaned out every store near me, I'm just wondering if I'm the only one.
When I was in the hospital the other week, the guy next to me had a short bowel and was eating THREE bags of chips a day + Imodium to slow down his out put, and he still managed to get several blowouts in the few days I was there!Potato chips always move incredibly slow through me. They always thicken things up.
Interestingly enough, when I was in the hospital after getting my ileostomy, I wasn't allowed to leave until my output thickened up - they nurse would order me chips and it worked like a charmInteresting that potato chips slow him down. I would think fried food would speed it up. I was told salty chips are good for keeping electrolyte levels normal.
Do you do this immediately after an appliance change? I'm trying out the Hollister New Image system now, and I don't find the tape border to be specifically problematic (no peeling or anything like that).If I'm wearing something like Hollister that uses the cloth like baseplate I cover as much of it as I can with tape.
If Amazon in the UK is the same as Amazon in North America, then you should get it within a few days from ordering. Have you ordered form Amazon before? Did they take long then?Will it be here in time? I'm going next Friday (20th)