I am looking for some support please as it it hard to watch my son suffer daily :
My son who is 18 who was dx with crohns of the duodenum a year and a bit ago and has been on remicade (his first medication) for 4 infusions so far. His G scope last week thankfully showed major improvement and he now has mild disease in the duodenum ( went from severe to mild). Yay!
However, the past 3 weeks or so, my son has been having bad cramps and mostly in the evening. I am wondering if there is something possibly going on in his bowel? Would I assume that if the remicade is working to heal the duodenum, than it must be working in the large intestine? Initially when my son had his colonoscopy a year ago, it showed very mild disease in the TI. Initially, the Dr wasn't even going to call it Crohns until he did the G scope and found moderate disease in his duodenum, that eventually became severe and remicade was the drug of choice.
I don't know if I should insist on another colonoscopy, or is pain something that should be expected??
My son went undiagnosed for years, but his main symptom was acute bouts of vomitting every few months or so and fatigue, but not persistent pain.
Any thoughts or insight would be greatly appreciated!
My son who is 18 who was dx with crohns of the duodenum a year and a bit ago and has been on remicade (his first medication) for 4 infusions so far. His G scope last week thankfully showed major improvement and he now has mild disease in the duodenum ( went from severe to mild). Yay!
However, the past 3 weeks or so, my son has been having bad cramps and mostly in the evening. I am wondering if there is something possibly going on in his bowel? Would I assume that if the remicade is working to heal the duodenum, than it must be working in the large intestine? Initially when my son had his colonoscopy a year ago, it showed very mild disease in the TI. Initially, the Dr wasn't even going to call it Crohns until he did the G scope and found moderate disease in his duodenum, that eventually became severe and remicade was the drug of choice.
I don't know if I should insist on another colonoscopy, or is pain something that should be expected??
My son went undiagnosed for years, but his main symptom was acute bouts of vomitting every few months or so and fatigue, but not persistent pain.
Any thoughts or insight would be greatly appreciated!
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