I was diagnosed earlier this month with terminal ileal crohns . The doctor prescribed Pentasa but changed it to sulfalazine because of the cost. Mine was described as very early. Has anyone had any luck with sulfalazine for crohns in their terminal ileum?
-
Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.
Sulfalazine please help
- Thread starter Cody Collins
- Start date
Ron is yours in the terminal ileum? How long did it work for you? Thanks for the reply.
Part of mine was in the terminal ileum . I had my terminal ileum along with a small part of my colon removed in 2010. I had been off the sulfasalasine by then for a few years. My Crohns is in the large intestine right now. Everyone is different in their response to medicines.
Last edited:
I don't think the sulfasalazine will work well. How mild is your crohn's?
Mine was described as very early and mild by the doctor.
My main question is if you guys think the Pentasa would have anymore benefit to me
- Location
- New York, USA
Sulfasalazine used to be the go-to drug when I was first diagnosed - getting close to 40 years now.....it initially worked well for me, for years, would put me into remission. Over time, the remission periods would get shorter and shorter and eventually I moved on to stringer drugs. Mind you, back then, it was common practice to be put on medication until remission was achieved, then taken off of it until another flare occurred. This is different thinking than these days where maintenance dosages are much more common.
Couldn't tell you if Pentasa would be more effective, that is an individual experience.
Couldn't tell you if Pentasa would be more effective, that is an individual experience.
Thank you so much Lisa, very informative. Was your crohn's in your terminal ileum as well?
- Location
- New York, USA
In my case, most of my colon was/is involved.....