hi all
a noob on here but unfortunatly not a noob to crohns..
Had it since my early 20s, had a operation in 2004 to remove some of the small bowel and was lucky enough to be sewn back up and not need a stoma bag.
Fast forward now 6 years and im super poorly, i cant honestly remember the last time i didnt feel sick or in pain, my crohns started to flare up on my honeymoon in September 2009 and has gradually gotten so bad i litterally cannot eat now for the fact i end up with severe pains in my stomach and vomit and all the other usual symptoms..
tried all the meds and also infliximab but i think as the disease has gotten worse over the last few years and wasnt treated correctly they say the scans show 15cm of my small bowel is too scared now and wont allow food through and will need removing.
Appointment to see surgeon is planned within the next 2 weeks, maybe sooner but i am really scared now regarding the operation and the thought ill need a stoma, even if its only for a temp period.
Not sure what im asking for really, maybe reassurances of the people that have had the operation and have ended up having to have a stoma, temp or perm.
How are you coping with having one? Im self conseuis at the best of times but the thought of pooping in a bag on my side fills me with fear
also scared about the op incase it goes wrong. Espec now i just got married and havent even had the chance to enjoy being with my wife properly and enjoy life
I just want the pain to stop and realise the operation is the last option ive got really since none of the meds helped (due to being given to me too late i guess)
Thanks
Rescue Me, your uk forummer..
a noob on here but unfortunatly not a noob to crohns..
Had it since my early 20s, had a operation in 2004 to remove some of the small bowel and was lucky enough to be sewn back up and not need a stoma bag.
Fast forward now 6 years and im super poorly, i cant honestly remember the last time i didnt feel sick or in pain, my crohns started to flare up on my honeymoon in September 2009 and has gradually gotten so bad i litterally cannot eat now for the fact i end up with severe pains in my stomach and vomit and all the other usual symptoms..
tried all the meds and also infliximab but i think as the disease has gotten worse over the last few years and wasnt treated correctly they say the scans show 15cm of my small bowel is too scared now and wont allow food through and will need removing.
Appointment to see surgeon is planned within the next 2 weeks, maybe sooner but i am really scared now regarding the operation and the thought ill need a stoma, even if its only for a temp period.
Not sure what im asking for really, maybe reassurances of the people that have had the operation and have ended up having to have a stoma, temp or perm.
How are you coping with having one? Im self conseuis at the best of times but the thought of pooping in a bag on my side fills me with fear
also scared about the op incase it goes wrong. Espec now i just got married and havent even had the chance to enjoy being with my wife properly and enjoy life
I just want the pain to stop and realise the operation is the last option ive got really since none of the meds helped (due to being given to me too late i guess)
Thanks
Rescue Me, your uk forummer..