I've had ten (that sound's like I'm showing off doesn't it? )24601, really 4? That's awful! I just hope and pray none of us have to go through this again!
Glad things got moving again! My nurse gave me a high five after my first one post surgery. Take it slow,my first day home wacked on dilaudid,I moved something and a inguinal hernia was a result. I had to recover enough from the resection before it could be tended to. Just an FYI. Follow your restrictions and keep walking.Thank you all for your input! It was very appreciated! Especially while I was in the hospital. The walking did help!
My bowels finally got moving! Took like 5 days. They had no idea what they were doing. I knew it wouldn't be great, because it's a small hospital and I've had trouble there before. This surgery is pretty common though so I thought let's just do it.
I only had ice chips for 7 days. I won't go into it, you can probably relate, but I feel like I've been through hell! I am on the road to recovery now though!
24601, really 4? That's awful! I just hope and pray none of us have to go through this again!
No, ten abdominal and pelvic surgeries of various kinds. Some very minor though. And I have other medical conditions which complicates things. The pelvic surgeries weren't to do with Crohn's. I don't regret them though. I'm much happier having had surgeries. I honestly don't know how I'd have coped without my stoma surgeries, and my last surgery literally saved my life. Recovering from surgery is hard but surgery is not a bad thing.10 small bowel resections? That's awful!!!
Yep, agreed there are many more treatment options now! I think the future looks very much brighter!
I was diagnosed in 1996 but there still weren't many options then - steroids (prednisone, of course, and budesonide was just introduced), Exclusive Enteral Nutrition (if you were very lucky and had an enlightened doctor) and azathioprine and 6mp.
I never responded well enough to those treatments but perhaps if I'd had infliximab or adalimumab earlier in the course of my disease it would have made a big difference and reduced my need for surgeries (3 small bowel resections with numerous strictureplasties and 1 for multiple strictureplasties, all over a period of 13 years, 3 of them very much life-saving, the last a little more optional IMO, though my doctors don't agree).
I just wanted to point out, because I'd hate to adversely affect the way anyway thinks or feels about their own situation, that I was just joking in my post above about 4 surgeries being an underachievement. We're all different, our diseases will behave differently and our need for surgery will therefore be different. And I know that none of us here are in competition over what we've been through and our experiences can't be measured by mere numbers (of surgery, hospitalizations, years of symptoms or anything else).
I just wanted to make that super clear so that no one feels like they need to minimize their experiences or that they are less deserving of help or support.
Ckk4 I hope you never need surgery again either! :ghug: