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Symptom free after 10 day course of Antibiotics

So i was super sick all of March, April, May. I had stopped eating except for one forced meal per day and was passing loads of blood and puss for about two months. I had taken myself off of 6MP in November and was coasting with no meds in my system.

My doctor then prescribed me Cipro/Flagyl for 10 days, 500mg x2day. 3 days later i was only going to the bathroom 3 times per day in the morning per usual and normal bowel movements. Before the antibiotics i was going 10-15 a day and passing lots of blood and puss. 10 days after cipro/flagyl i was symptom free.

That was a month ago and i am still symptom free eating what i want when i want and having solid formed stools in the AM on schedule.

WTF???? Why did i suffer for 6 years taking sterodis, Carcinogenic 6MP, IMuran, and steroids, and worthless Asacol that just went down the drain?

Why was i on all these poisons and needlessly sufferred when an antibiotic coctkail took away all my symptoms in 3 days? Anyone? Anyone?

Diagnosed in 2006 with Severe UC.
ReDiagnosed in 2008 Severe UC
ReDiganosed in 2010 Crohns

Been on Asacol, Lialda, Prednisone, 6MP, Imuran, Tramadol, Bentyl etc.

Now eating healthy striving for 90% plant based. NO MEDS. Only taking Bifudus and Acidopholus, S. Boulardi, and Mutaflor.

Happy to no be sick but feel like i needlessly suffered for 6 years.
 
Cool.

Were those probiotics prescribed in response to the use of the antibiotics or are you taking them unrelated?
 
Cool.

Were those probiotics prescribed in response to the use of the antibiotics or are you taking them unrelated?
In order to prevent C Diff, it is recommended to take probiotics to keep the bad bacteria at bay. I took it on my own as my doctor forgot to mention to take the probiotics this time, but most docs since childhood recommend yogurt when taking antibiotics.
 
Well that really does not suprise me at all. I have not been dx yet as my GI doc thinks IBS. But I have alot of health issus including IC (interstitial cystitis) which is very painful and debilitating. It is a disease that inflammes the bladder and sometimes causes ulcers in the bladder. I suffered for 3 years with it ( I prayed nightly to die I was in so much pain). Well I ended up with a infection in my urinary tract that was awful and was put on an antibitoic ( kelflex) for over a month. Low and behold my bladder got better. I have had to be on this keflex low dose for the last 4 years just to keep things at bay.

Crohns may in fact be caused by a bacteria. It took them years and years to realize that stomach ulcers were caused by a bacteria. In any event, I am glad you are doing better, that is great....
 
I also had a wonderful response to Flagyl. I thought it was the best thing ever. I tried to get the GI to let me keep taking it. I was flatly refused. Within a week or two of stopping all the symptoms were back and I have not had the same great response to it when taking it since them.

I hope you continue to feel good!
 
I had a friend who has crohns take Xifaxan and it helped a little bit. Them his derm doc prescribed an uncommon antibiotic for an uncommon skin infection that causes back acne. 2 days later e was having solid bowel movements. He's still fine two weeks later. Go figure. There is definitely a bacterial component to this disease if not the main culprit. My current thinking is that an overgrowth of bad bacteria causes the disease. Years before I always felt better while on antibiotics for respiratory infections but never fully better. I think it takes a few antibiotics at strong doses to knock back the offending bacteria. I was out in remission last May after cipro flagyl and didn't flare again till march of this year. I'd much rather take antibiotics a few times a year instead of Expensive and dangerous drugs.
 
If it was a wonder drug for Crohns I would expect it to work every time, but I have been prescribed it about four more times since the first time and it has not had that miracle effect.

I was told that being on antibiotics long term has its own set of side effects. I agree that their must be a bacterial component, but I think it is more to it than that. Also I am on the Humira primarily because of my fistulas. If the docs were just trying to make money they would have allowed me to switch to weekly shots since it seems to run out early. Instead they are making me wait 3 months to make sure the change is needed.
 

KWalker

Moderator
JohnnyO. That is the exact reason I don't take medicine. Good job feeling better with just the cipro/flagyl course though. I've been on it before and found it very effective
 
Talking about this is like trying to walk on eggs. When there is so much money involved, some people are getting a bit of it in their pockets where it shouldn't be, it's inevitable. On the one hand you have one of the most expensive medication around, on the other hand you have one of the most readily available medication on the market, antibiotics, often generic.

But like I said, it's like trying to walk on eggs, but it's important to consider the benefits, doctor open to all available options with the interest of the patient in mind.
 

KWalker

Moderator
I agree. Having a good doctor can make a huge difference to someone with crohns. I stopped seeing my G.I because of his attitude towards everything, lack of empathy and thinking Imuran is the answer to everything. My FIRST visit with him, he prescribed me Imuran after about 5 minutes of talking to him, no scope or anything. When I asked for another medicine he straight up told me nothing else works, and is a waste of time. After that I've been compltely turned off from wanting to go back. We need more good doctors!
 
My doctor became irate after he had ordered Humira and I told him I wasn't ready to go down that route. That was a year ago. Today I am off all meds and symptom free.
I don't think Flagyl alone works. You have to take cipro too and at least ten days at 1000mg per day in two divided doses.
 

PsychoJane

Moderator
Even though I love antibiotics combo (they brought me intense relief for my fistulae), they are not as safe as we want them to be either. It seems we are way less worried about antibiotics and tend to trivialize them as they are part of the life of pretty much everyone at some point in contrast with the more potent therapies options we are given.

I don't want to be a party pooper but Fluoroquinolone(cipro), and metronidazole(flagyl) both are blackbox warning drugs. One for its risks of tendinitis/tendon rupture and the other one for its carcinogenic effect observed in mouse and rat. My goal is really not to scare anyone one here, I'm pretty freak when it comes to deal with med side effects and these are the first treatment I am ready to agree to as well but still, they should not be taken on long term basis as much as possible.

On the other hand, I recognized that for some of us, it would be a great idea to have at the least tried a course to help lessen the symptoms. Even though they have always been the first line treatment with my crohn, it seems it is not always the case and I think it would probably be beneficial for many as it seems it helped a lot for you Johny.
 
I agree they carry risk like all drugs, but, it's far less risky than humira or 6mp/Imuran both of which are handed out like candy. Why are they so stingy with cheap antibiotics but pushing Humira so hard?
 

KWalker

Moderator
I think the fact that you're only cipro and flagyl for 10 days (which is the most common cycle) the risk would be much lower than say remicade or humira where people stay on them for months if not years. I did not know about them being black boxed though psychojane. That's pretty intimidating. I think its safe to say that there isn't a single medication that is actually good for an individual. Their purpose is to kill or band aid an infection/disease and they have to be pretty strong for that to happen.

Just something I've always wondered but maybe that's why a lot of people end up having surgery for crohns even while taking meds that "help". After taking all that medicine for awhile it can't be good for anybody. Who knows what its doing to the rest of your body?

Enjoy being med free and hopefully you can make it last. I've been med free since 2010 and no regrets so far. You might have "off" days where something hurts or you get stomach cramps and I do too, but they are very minimal and go away on their own without meds.
 
Location
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Hi i just wanted to tell you the same thing happened to my daughter before she was diagnosed with IBD. GP decided to try her on a course of 2 lots antibiotics for 2 weeks even though all her stool test kept coming back normal. Within a few days she was symptom free , this lasted for 2 months. When she was finally diagnosed i asked the specialist why her symptoms had cleared up with the antibiotics. He had absolutly no idea. Aparently the antibiotics she was given (can't remember the names) could not HELP with IBD.
 
Hi i just wanted to tell you the same thing happened to my daughter before she was diagnosed with IBD. GP decided to try her on a course of 2 lots antibiotics for 2 weeks even though all her stool test kept coming back normal. Within a few days she was symptom free , this lasted for 2 months. When she was finally diagnosed i asked the specialist why her symptoms had cleared up with the antibiotics. He had absolutly no idea. Aparently the antibiotics she was given (can't remember the names) could not HELP with IBD.
I wish i could say money has nothing to do with it. There is no money in curing diseases. There is only money in A. Naming new diseases and B. creating new expensive drugs to treat, not cure the new illness.

Don't you think it's strange that your doctor did not want to investigate antibiotics? I'm lucky that at least my family doctor is a real scientist who listens to her patients and hasn't whored herself out to Big Pharma like my GI doc. He must have stock in Abbot laboratories. Humira is their number 1 seller!
 
Location
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We have had a lot of problems with doctors but any way thats a different story.
I hope you continue to feel a lot better , may it last a long time.
Take care.
 
That's amazing! I hope your med(or, lack there of) routine keeps on keeping on! Amazing how antibiotics can either tear you up or put you completely out of your misery.

A friend of mine actually takes antibiotics as part of his treatment. He cycles on and off every few weeks in combo with his Humira. The antibiotics + Humira got him in remission.

I guess I was very fortunate to have a GI who believes in vitamins/minerals/probiotics along with the milder maintenance dose first. Unfortunately that didn't work for me nor did the atibiotics but I'm glad that his notion isn't: "Biologics fix everything & to heck with the natural crap!" Whenever I am having horriable bloating/pain he always gives me Flagyl/antibitocis if I ask. He doesn't switch my medications until he scopes me to rule out things like SIBO.
 
I had the tendon issue with cipro. I was taking it for a UTI and all of a sudden in the middle of the night I woke up in agony in my left upper arm. That drug messed up my tendon, so yes antibiotics can cause a cascade of issues on their own. They are the blessing and the curse... These drug makers need to find a way to make drugs more safe without all the horrid adverse side effects...









I don't want to be a party pooper but Fluoroquinolone(cipro), and metronidazole(flagyl) both are blackbox warning drugs. One for its risks of tendinitis/tendon rupture and the other one for its carcinogenic effect observed in mouse and rat. My goal is really not to scare anyone one here, I'm pretty freak when it comes to deal with med side effects and these are the first treatment I am ready to agree to as well but still, they should not be taken on long term basis as much as possible
 
I had the tendon issue with cipro. I was taking it for a UTI and all of a sudden in the middle of the night I woke up in agony in my left upper arm. That drug messed up my tendon, so yes antibiotics can cause a cascade of issues on their own. They are the blessing and the curse... These drug makers need to find a way to make drugs more safe without all the horrid adverse side effects...









I don't want to be a party pooper but Fluoroquinolone(cipro), and metronidazole(flagyl) both are blackbox warning drugs. One for its risks of tendinitis/tendon rupture and the other one for its carcinogenic effect observed in mouse and rat. My goal is really not to scare anyone one here, I'm pretty freak when it comes to deal with med side effects and these are the first treatment I am ready to agree to as well but still, they should not be taken on long term basis as much as possible
Agreed. These drugs have their warnings as well, but i am a calculated risk taker. Id rather take ten days of antibiotics than a lifetime of biologics or immune suppresants. I'll take some tendon pain or rupture over "fatal events" the nice way of saying long excruciatingly painful death (humira and remixade most sever side effects) or Leukemia or pancreatitis (Imuran and 6mps worst side effect). Oh and it's not a GMO drug made from rat DNA (Remicade) or human DNA(humira).

As far as carcinOgens are concerned, I know 6mp and Imuran are carcinogenic, and I wouldn't be surprised of the biological drugs are too.
 
It is true that the dangers with them seem to be less but it does not matter if they do not work for you. I have had a number of times where I had to take cipro/flagyl but only the first time brought symptom relief and even that first time a couple weeks later it was back to how it had been.

I am glad you feel good and hope it continues but antibiotics are not a magic wand for everyone. Wish it was, I too would rather a periodic 10 day course of antibiotics over bi-weekly shots etc.
 
When they treat animals for E. Coli or MAP, antibiotics work, but after a while the symptoms come back. It's rare that they use antibiotics since it's far cheaper to let the animal die, imagine using antibiotics on a cow, it costs more than the cow is worth. Fact is, antibiotics are working on people too for crohn, not for everyone, but they have a measurable effect, which means bacteria are involved in crohn, and the TNF-alpha is coming from infected macrophages.

There are a few people in particular who are extremely one sided, I'll just name one of them: HJ Van Kruiningen, start reading his team's studies, he will write the most ridiculous studies you can imagine, just to prove that crohn has nothing to do with bacteria A or B. And the only reason his studies are accepted is because of the peer review system, if you comment on a study and disagree with the study, as many did with "where are the weapons of mass destruction" <- this is an actual title of his crohn study about bacteria (he ignored that he found E Coli in his study btw, he will be at meetings and goes from one extreme into the other, he has changed his mind about 500 times now), no one from his team will rep other researcher's studies, which means they are not peer-reviewed and which means they lose funding, so even though many people might disagree, the mere idea of disagreeing scares people, this is the biggest flaw in the peer reviewed literature.
 
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Here is an interesting debate between him and a biologist / gastro?

Van Kruiningen (below at the stage) used a lot of studies to prove a bacteria wasn't involved (he picked all the studies that agreed with him, but ok), so a person (in the audience) asks him how is it that he sent 19 blood serum to Naser for bacterial lab study, (8 of them control), blindfolded, Naser sent them back and told him which 9 had crohn, all 9 were correct.

http://www.youtube.com/watch?v=2VgaVLbxQU8&feature=relmfu
 
That's the thing about studies . Those who can afford them (big Pharma) can "discover" whatever results they want and hide any information they don't like.

I posted somewhere about the triple antibiotic studies being carried out overseas. Very promising.

I can't wait until Wikileaks exposes big Pharma and their co-conspirators.
 
I personally think that bacteria does have a role in alot of diseases out there. I have IC which most ALL urologists will tell you bacteria does not play a role, but I am proof as well as many others that it does. I was in bladder hell for over three years and was finally put on an antibitoic due to a nasty infection and low and behold my bladder got better. But here is the catch, I have to be on this antibitoic(keflex) low dose all the time. That is bad. I am sure alot of my gut issues are due to me having to be on this low dose antibitoc. I have been on it for over 4 years.

Antibitoics are probably not the answer, as you will have to be on them continuously to keep these bacteria at bay. It is the same with lyme disease. Any lymie out there knows that their symtpoms will get better while they are on antibitoics, but when they get off them all the symptoms come right back. Make no mistake, there are consequences to taking antibitoics short term and long term. I have alot of issues due to having being on one for years I am sure.

I have a friend who sees an osteopath doctor who stays on the natural side of things. My friend met a lady who had severe crohns where she was about to lose alot of her intestines. Well she went to this guy and he had her go on a special diet( I believe it was all juicing diet), and did some treatments he does and she is ok now. This is what she told my friend. This doc does not believe in putting a name on a disease, he said it all about a malfunctioning immune system and that the treatment is the same. I have not seen this osteopath yet, but I am thinking about it.











Agreed. These drugs have their warnings as well, but i am a calculated risk taker. Id rather take ten days of antibiotics than a lifetime of biologics or immune suppresants. I'll take some tendon pain or rupture over "fatal events" the nice way of saying long excruciatingly painful death (humira and remixade most sever side effects) or Leukemia or pancreatitis (Imuran and 6mps worst side effect). Oh and it's not a GMO drug made from rat DNA (Remicade) or human DNA(humira).
 
I agree that long term antibiotics are not good, but I obviously had an infection due to the blood and puss. My doctor thought as much. After ten days my I was symptom free. Last year I was out into remission after ten days as well. That lasted 9 months. Taking antibiotics once or twice a year is not that big a deal compared to taking immunosuppressants. I can now eat anything again. Believe me I have tried every diet and natural remedy and I do believe they can be effective when your body can actually absorbes nutrients. My system was totally down and it barely mattered what I ate.

My family doctor didn't have a good answer either as to why antibiotics got rid of my crohns symptoms. I will post more info in a
Month or so after I get bloodwork and colonoscopy. I'm hoping it shows far less inflammation.

I would get a second opinion regarding long term Keflex use.
I was only on antibiotics for ten days.
You should consider probiotics to replenish good bacteria.
I've never heard of anyone taking Keflex for 4 years. I would research this and make sure
Your doctor didn't make a mistake. Meication errors kill over 100,000 people a year. Another 100,000 die each year from infections they contract during a hospital stay.
The chances your doctor is awesome are slim
Considering how many quack I've encountered even on the mos prestigious medical establishments in the US . I'm not anti doctor, my
Mother is an MD, but most of them are overworked, average, and indoctrinated by studies paid for by drug pushers (big Pharma). Good
Luck navigating the mine field that is our healthcare system.
 
@Ihurt: Have you experianced the excrutiating side effects of tendonitis or the others associated with Cipro/Flagyl? I haven't had any issues with the biologics, other than DIL. I have lost most of my sense of taste from Flagyl and I couldn't walk for 2 weeks while on Flagyl/Cipro. I got up to use the bathroom when I was in the hospital and I felll down to the ground. I couldn't press the button to let the nurse know I couldn't walk & I was crying, on the ground, from the pain. I had to wait an hour for a nurse to help me up into the bed. I understand biologics aren't for everyone but when you've lost 85 pounds in less than a year, failed the diets, I bet you'd be willing to take a shot once every two weeks rather than be crippled for the rest of your life. Yes, the side effects of cipro/flagyl can be permanent. I tried to cotrol my Crohn's naturally but all that got me was a whopping 85 pound weight loss & severe Crohn's. I've NEVER met a person with severe Crohn's(I don't trust everyone on the forum who claim to have severe Crohn's when they can't even spell it correctly) control their Crohn's 'naturally' for their whole life time. I've met some people who controlled it for a decade or two but when the flare came back, they were in the OR getting their whole colon removed.

Other than that, I agree with what you said.

I honestly don't understand why it is okay for Cancer patients to do heavy chemo but it's not okay for people with a severe case of Crohn's to use something like a biologic. Although Crohn's is RARELY fatal, if you need the drugs to survive, you need the drug. I wish I could control my Crohn's with Asacol or even diet but that's not going to happen at this time. When I get in remission, I'd gladly try to control my Crohn's with something very mild & diet.

Conclusion is, when discussing Crohn's, there is NO 'one size fits all' solution. Everyone has differet triggers, differet genetics, different lifestyles and a different way to control it. Some think antibiotics are a miracle, some thik diet changes are miracles, and some thik biologics are miracles.
 
The issue I have with biologics is the long term effect it has on the disease, if the very high chance that crohn is caused by bacteria that are multiplying inside the host, is not taken into account.

Raise of hands of people who got better on biologics - several hands are raised

Raise of hands of people who can stay in remission going off biologics - not seeing too many hands go up this time

If crohn is a disease caused by a bacteria and you are suppressing the immune system, you are really fucking those people over big time, since suppressing the inflammation is all well, but you are putting everything into place to make a bacteria reproduce that much faster.


http://www.ncbi.nlm.nih.gov/pubmed/16503465


Department of Medicine, University College London


Defective acute inflammation in Crohn's disease: a clinical investigation.

"In Crohn's disease, a constitutionally weak immune response predisposes to accumulation of intestinal contents that breach the mucosal barrier of the bowel wall, resulting in granuloma formation and chronic inflammation. Polymorphisms in CARD15 do not underlie this phenotype, but incapacitate the NOD2 pathway that can compensate for impairment of innate inflammation. Current treatment of secondary chronic inflammation might exaggerate the underlying lesion and promote chronic disease."
 
The issue I have with biologics is the long term effect it has on the disease, if the very high chance that crohn is caused by bacteria that are multiplying inside the host, is not taken into account.

Raise of hands of people who got better on biologics - several hands are raised

Raise of hands of people who can stay in remission going off biologics - not seeing too many hands go up this time

If crohn is a disease caused by a bacteria and you are suppressing the immune system, you are really fucking those people over big time, since suppressing the inflammation is all well, but you are putting everything into place to make a bacteria reproduce that much faster.
Yup! I could not heal while on Imuran/6mp.

Since I went off Imuran and took antibiotics my fistulas and
Crohns symptoms have gone. No fistulas or abscesses for over 6 months exactly since I stopped Imuran.
 
Almost every test I see on immune modulators, biologics or imuran or whatever, uses only 2 measurements, disease before and after treatment. What they should be also checking imo is disease activity when patients discontinue, how fast is the relapse, some studies do this but the majority does not. The involvement of reproducing bacteria is a big part of that.

CDAI, crohn's disease activity index.


Person A never goes on immunosuppressant, CDAI 300 ---> 2 years pass ----> CDAI 300

Person B goes on immunosuppressant, CDAI 300 -----> 2 years pass --> CDAI 200

Person C goes on immunosuppressant, CDAI 300 ----> 2 years pass ---> CDAI 200, goes OFF immunosuppressant..CDAI ?????, worse than Person A??

That's what that link I linked suggest, they suggest that person C is going to be worse off if that person goes off meds than person A.

No one ever checks person C, and person C is a real person we see all the time on the forums, I'm one of them, people who stop with certain medications, because of worries of potential side effects, or because the med doesn't work anymore..or whatever reason.
 
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@Kiny & Johnny O: Just out of curiosity, have you tried or have read any studies about the Marshall Protocol? I was admitted in the hospital last moth & a nurse, who has RA, said she was one of the first patients to try the protocol in our state. She said she stopped all the biologics because she felt crippled still and got on the protocol. She said she had 17 joints affected and now only 2 are affected and she doesn't use a walker anymore. She kept pushing me to get in the 'trial'. I've heard of the protocol because my aunt with Lyme's did it. The nurse said she felt like she was dieng the first few months but it was worth it in the end. You also have to be on a very restricted diet on the protocol. From my understading, the doctor who made the protocol has a theory that a certain stubborn bacteria is what triggers the immune system to go out of wack & thus certain atibiotics are needed long term to rid of the bacteria. I haven't seen much research on it & I don't like the idea of one specific treatment being a cure all for autoimmune diseases. Your thoughts?
 
I'll look into it but I'm currently not experiencing any symptoms thank god. Recent research shows that modern science has only begun to understand how bacteria interact and affect our bodies. So the earth is flat until some "study" says its round. They said cigarettes were safe for decades, because studies didn't show they were bad.
Anyone who suffers with Crohn's doesn't have time to wait for the govt to figure it out. All I know is I am currently symptom free going on a month. I was bad off for 3 months before.

I know there is promising research being done withong term trie antibiotic therapy with high remission rates.
 
JohnnyO.

I have had to be on the low dose keflex due to the recurrent Urinay tract infections I was getting. It got to where I was having to take full dose antibitocs every three weeks due to the infections I was getting. This is why the doctor put me on the low dose keflex to help keep the infections down. I am allergic or have severe reactions to ALL the other antibitocs so I am not at the liberty to have a choice of which anti-B's to take when I did get a Urinary infection. Alot of women who are prone to getting UTI's have to be on low dose anti-B's. They usually take other anti-B's like macrobid or bactrim as these are safer for long term, but I am allergic or have adverse reactions and cannot take those.

I am sure it is not good being on this kefelx, I hate having to take antibiotics as I know they are no good for the body, but then I could not keep getting the constant infections. I have IC( interstitial cysitits) which makes the risk of getting these infections greater. It does suck.

Oh I have been through the whole health care system. I have been chronically ill for the last 9 years. I have seen so many specialists, hell I even went to the mayo clinic( waste of money there). I have spent so much money trying to get answers and trying to get well. You are right, actual "good" doctors , well there are not that many. These orphan diseases are not very well understood and the specialists out there are just not that knowledgable when it comes to these complex diseases. They are good at slapping names on these diseases and writing scripts like bandaids, that is about it. I have seen holistic docs as well and some are good, but again they are limited too. In truth, we ourselves are really our own advocates when it comes to our health.









I would get a second opinion regarding long term Keflex use.
I was only on antibiotics for ten days.
You should consider probiotics to replenish good bacteria.
I've never heard of anyone taking Keflex for 4 years. I would research this and make sure
Your doctor didn't make a mistake. Meication errors kill over 100,000 people a year. Another 100,000 die each year from infections they contract during a hospital stay.
The chances your doctor is awesome are slim
Considering how many quack I've encountered even on the mos prestigious medical establishments in the US . I'm not anti doctor, my
Mother is an MD, but most of them are overworked, average, and indoctrinated by studies paid for by drug pushers (big Pharma). Good
Luck navigating the mine field that is our healthcare system.[/QUOTE]
 
Keepingthefaith,

Yes, I had the horrid tendinitis after I was on the cipro. I went to the urgent care and the doctor there told me she herself had a ruptured tendon due to taking cipro. I was told I should never take cirpo again or any other drug in that class. I also cannot take flagyl. It caused my whole mouth/tongue to burn and my taste buds swelled up. It is awful that the nurses did not come help you when you fell. That is terrible. Did they say the cipro caused that to happen??

I certainly agree with you that you have to do what ya gotta do in order to feel well. Yes, these drugs are horrific, they have horrid side effects, but what other choice it there, like you said, if you do not take the meds, then you will suffer. I hate having to be on a low dose antibitoic( hell, I know it is messing me up and causing alot of issues), but it is that or get a urinary inefection that I cannot treat that will possibly mess up my kidneys. I am allergic and have bad adverse reactions to almost ALL the other antibitoics out there so I cannot take them. I do not blame you in any way for taking the meds that you need in order to get yourself well. Everyone is different and what works for one may not work for the next guy. It is all trial and error.

I know my sons friend was dx with crohn's disease whe he was 17. He was on prednisone for awhile and one other med, not sure the name of it. I spoke to him a couple weeks ago and asked him how he was doing. He said he is not taking any meds at all( he has no health insurance and cannot afford the meds and his family just lost their house and are going through hard times.) He said he has been symptom free for the last 2 years though so he is not taking anything, he just watches his diet. He is one of the lucky ones I guess.









@Ihurt: Have you experianced the excrutiating side effects of tendonitis or the others associated with Cipro/Flagyl?
 
Ihurt, have you tried nettles tea? If not you have nothing to lose. It has antibacterial properties as well as astringent. My uncle overseas cured his prostate issues by drinking it every day for a year.

You may also want to check out Oregano Oil. It is a natural antibiotic that bugs can't develop immunity to.

Also do whatever you can to raise your Vit D levels. Have you been checked for Vit D deficiency? It's taken me a year to get mine from 31 to 44.
 
Hi JohnnyO,

I will check out the Nettle tea, thanks. I did so the wild oregeno for about a half a year when I was in the midst of a nasty UTI and it did not really help. I was using a liquid form of the oregeno though. I have been reading that it is better to use a encapsuled form though so I may try that.

Oh yeah, I had my VIT D checked back 4 years ago and it was at a 9. I was put on 5000IU daily of the VITD and within 6 months I was back up to like 63.
I get it checked by my doctor every three months just to make sure the levels are good.

I also take heavy loads of probitoics. I use the 50 billion by renew life and also flroajen3. I have been on these for years as well( especially since I am taking an antibitoic).

I will definitely check into the nettle tea, it is worth a try, thanks!






Ihurt, have you tried nettles tea? If not you have nothing to lose. It has antibacterial properties as well as astringent. My uncle overseas cured his prostate issues by drinking it every day for a year.

You may also want to check out Oregano Oil. It is a natural antibiotic that bugs can't develop immunity to.

Also do whatever you can to raise your Vit D levels. Have you been checked for Vit D deficiency? It's taken me a year to get mine from 31 to 44.
 
Location
Ohio
That's really great that you're doing so well. Chloe has done really well with ldn but still had one or two not so great days occasionally with mild fever and some diahrrea. Overall she was good but i thought we could do even better. We added a few tablespoons of colloidal silver every day, which is a natural antibiotic. I'm afraid to say it out loud but for the past couple weeks it's like she doesn't even have crohns at all. We also take good probiotics to keep good bacteria colonized. She's doing better now than she ever has so we are going to keep it up and see how long it lasts.
 
So i'm back on Cipro/Flagyl again. Day 3 and my energy levels are back up and i'm almost pain free. Some mild D from antibiotics but no more blood and puss. I'm wondering if I have diverticulitis? I got sick again 2 weeks after a Zpack. I also travelled a lot this year and got sick from food and water several times over the summer. Doc told me to get a colonoscopy so i will schedule on for December.
 

KWalker

Moderator
I have the same thing with Cipro/Flagyl. It clears me right up while I'm on it and I feel great, but it seems like once I get off and they get out of my system the drainage comes back. (I"m talking about an abscess of course). I'm wondering if you might have heard the same thing but doctors actually won't prescribe me the two anymore because the said recurrent antibiotics can lead to sepsis. Is that true?
 
I think what he means is that they can cause bacterial resistance where they just wont work anymore..








I have the same thing with Cipro/Flagyl. It clears me right up while I'm on it and I feel great, but it seems like once I get off and they get out of my system the drainage comes back. (I"m talking about an abscess of course). I'm wondering if you might have heard the same thing but doctors actually won't prescribe me the two anymore because the said recurrent antibiotics can lead to sepsis. Is that true?
 

KWalker

Moderator
Oh crap, wait. She was talking about something else. I'll have to think of it but it is an infection usually known by the initials. I'll post back as soon as I remember it. She literally wouldn't give me another prescription because of the "high risk" of thise infection from starting and stopping the two
 
Location
Ontario
I have taken so much flagyl over the past 7 years that it no longer does anything for me except make me vomit and give me white mouth.
 
Oh crap, wait. She was talking about something else. I'll have to think of it but it is an infection usually known by the initials. I'll post back as soon as I remember it. She literally wouldn't give me another prescription because of the "high risk" of thise infection from starting and stopping the two
C Diff which can happen after cipro vancomycin etc, BUT, Flagyl is used against C Dif so ur doc is mistaken. That's why they give flagyl with cipro to cut down chances of c dif. Good doctors are hard to find and they all make
Mistakes/oversites.
 
Hey JohnnyQ, are you symptom free, without any CD meds? After my DX wit Crohns I took lialda until my prescription finished I stopped taking Lialda and would go on off and within the last three years my symptons of crohns hasnt worsen. I had a colonoscopy yesterday and my crohns is still in the terminal ileium and hasn't worsen one bit still mild, with taking meds on and off. He perscriped me Apriso to take 6 times a day, don't like the idea of taking a drug 6 times in a day. I might just do 3-4 and see how I feel.
 
Yes. Off 6mp and Lialda since nov 2011. Lialda gave my friend and I colitis symptoms. Look it up. Colitis is a side effect of Lialda. The antibiotics knock it out, for me, in a few days. I'll have a colonoscopy next month to see the insides.
 
Yes. Off 6mp and Lialda since nov 2011. Lialda gave my friend and I colitis symptoms. Look it up. Colitis is a side effect of Lialda. The antibiotics knock it out, for me, in a few days. I'll have a colonoscopy next month to see the insides.
Yeah I did see that. Ironically when I didn't feel so well, I went to a G.I got Lialda and then my symtoms got worse and led me to have a colonoscopy and find uclers in my terminal ilieum.
 
Yes after battling this mystery disease for 6 years and being treated with the latest snake oils, I've grown highly suspicious. Why do they give us Lialda and prednisone and immunosuppressants? I'm starting to think they want to keep us sick. By they I mean Big Pharma, Crohns colitis foundation, and the Gastroenterology community.
 

KWalker

Moderator
Yes, C Diff, sorry. I even told her I would take the chance and she still wouldn't give me anymore.
 
I have not been dx with crohns. I went through some tests and am still trying to find out what is wrong. I will say that I wonder too as to why they would give immunosupressants first instead of trying other less dangerous routes. I mean if Crohns disease is indeed an infection, then being on immunosupressants would definitely make the situation worse. They really do not even know what causes crohns disease. They call it an autoimmune disease, but there is no proof that this is what it is.. I have other health issues and also they are saying autoimmune. I have IC of the bladder, kind of similar to crohns except it is in the bladder. ( you can even get ulcers in the bladder). Well I was sick with the IC since 2006. I suffered for 3 years horrible unbelievable pain due to this. I then developed an infection and was put on strong doses of antibitoics. Low and behold my bladder got better!! I still have issues now and then though. I mean I am very prone to infections of the bladder.

Here is the only bad thing. Antibiotics will not work forever. Eventually the bacteria will become resistant to them and they will no longer work. I really wish these Big Pharma would seriously look into making drugs that would really help people, not just minimize symptoms(putting a bandaid on things!) I also honestly believe they do not even want to cure these chronic diseases. They make soooo much money off of people with them. I mean I was told that some of the biologics they use to treat crohns cost a fortune( like $3000 for one injection!). That is like getting robbed except without a gun! Same with cancer, they do not want to find a cure! I think there already is a cure, but no in way in hell they will come out with it. Hospitals would go bankrupt! There is a center that treats cancer holistically, I believe it is called the Girsen center. They have a supposedly pretty high cure rate with their cancer patients from what I read. They use diet and detox as a major part of their treatments. I remember reading that as long as a patient had not done any chemo or radiation, then they had a fairly good chance of beating the cancer with this places treatments.. You would be suprised how many people do not live long after doing chemo. It totally kills your whole immune system.

Anyhow, I just wish they would come up with cures, not treatments. But in this greedy world, that is not likley going to happen! Money is the all time mover of this world as sad as that is...
 
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